Paid Work:

Lucy Watts Independent Advocacy and Brokerage (Part of Lucy Watts Ltd)

• Independent Advocate
• Care package broker
• Trainer
• Consultant
• PHB Support online support platform

Freelance

• Independent Advocate
• Care package broker
• PHB Broker for Manchester Health and Care Commissioning
• Independent Advocate for Charlie Gard Foundation
• Consultancy
• Training and workshops
• Speaking
• Workshop / group facilitation
• Digital Marketing (especially for charities, patient groups and social media strategy/management)

Festival Spirit

• Admin
• Comms and marketing (inc social media)
• Grants and fundraising
• Volunteer management
• Other tasks.

RISE 

• Lead for Advocacy and Awareness

 

Committees:

• Member of the NHS Assembly (2019-present)
• Member of the NHS England Personalised Care Strategic Coproduction Group (2018-present)
• Member of the NHS England Children Complex Needs & SEND Board (2017-present)
• Member of the Transition Taskforce East of England Regional Action Group (2017-present)
• Member of the Transition Taskforce North London Regional Action Group (2017-present)
• Young Person’s Representative for the Ofsted and Care Quality Commission External Board for SEND Area Inspections (2017-present)

Patient Involvement & Palliative Care-related Roles:

• Founder & Manager of the Palliative Care Voices network (2017-present)
• Member of the Open University Sexuality Alliance (2013-present) and Founder/Chair of the Alliance’s Young Advisory Group, AdversiTeam (2018-present)
• People in Partnership Forum Member for Hospice UK (2016-present)
• Independent (Patient Involvement) Consultant for the Worldwide Hospice Palliative Care Alliance (2017-present)
• Patient & Young People’s Lead for the Digital Legacy Association (2017-present)

Research:

• Lead Co-Researcher for the ESRC-funded project Living Life To The Fullest (2017-2020)
• Co-Researcher for the MAGICYL Dignity Therapy Research Project(s) (2017-present)
• Patient Reviewer for the British Medical Journal (2017-present)

Ambassador:

• Ambassador & Young Avenger for Together for Short Lives (2013-present) 
• Global Youth Ambassador for the International Children’s Palliative Care Network (2015-present)
• Ambassador for Dreams Come True (2014-present)
• Ambassador for Include Me TOO (2018-present)
• Young Ambassador for Dog Assistance in Disability (Dog A.I.D.) and its Young Advisory Panel (YAP) Facilitator (2018-present)

Other:

• Trailblazer for Muscular Dystrophy UK (2016-present)
• Member of the Autumn 2018 NHS Peer Leadership Academy
• Huffington Post blogger
• Blogger at Lucy’s Light (2012-present)
• Affiliate Member of iHuman (The Research Institute for the Study of the Human at the University of Sheffield) (2018-present)
• Patient Partnership Panel Member for the British Medical Journal (2017-present)
• Director, Lucy Watts Ltd (2018-present)
• #MedLearn Ambassador
• Founder of the Young Adult Complex Condition Alliance (YACCA)
• ehospice contributor 

Former Roles:

• Trustee of Pseudo Obstruction Research Trust (2014-2019)
• Lay Member of the NICE End of Life Care Guideline Committee
• Patient Advisor for the EVASION-CIPO Research Project (Dr Adam Farmer and Professor Qasim Aziz)