Another year over
Christmas is a lovely time of year. I know not everyone enjoys it, and we all feel the pinch after buying presents; but I quite like it. Not because I get presents, not because of the food (especially since I…
Christmas is a lovely time of year. I know not everyone enjoys it, and we all feel the pinch after buying presents; but I quite like it. Not because I get presents, not because of the food (especially since I…
Yesterday I went to the Houses of Parliament for the Together for Short Lives reception to encourage MPs to adopt the eight priorities they have set out for the next government. I was a guest speaker, giving a speech about living…
Is England accessible?Much as the UK has, in some ways, made great strides with respect to those with disabilities, it still has a long way to go. Disability discrimination is still happening. Most places are not fully wheelchair accessible. Being…
Here is my video explaining my life with my conditions.I hope you all like it, let me know if you want me to do more videos in the future x
Carers come in the form of mothers, fathers, brothers, sisters, grandparents, sons, daughters, aunts, uncles, nephews, nieces, friends, and even strangers. They're ordinary people. But they have a gift; something special which cannot be taught. They know how to care;…
Victoria Jane, do you know how much I love you? We say it in passing; it's a bit of a formality really. But do you feel it? You know, do you feel loved and cherished and all warm inside in…
It's been 5 long years and 5 months since I became ill. It's been rough, very rough, and hard to cope at times, but there have been some wonderful things that have resulted from my ill health and the battles…
When I go out, people don't talk to me. They stare, some smile, and nobody talks. Well, that's not true, there is a minority who bend down and shout in my face like I'm deaf, regardless of the fact that…
However unlucky I feel, however bad things get, in between each crisis, I still consider myself very lucky. It is true a that there is always someone worse off than you, but I'm not a fan that saying because I…
A few weeks ago I was rushed to hospital with another bowel obstruction. I have them frequently, but most resolve themselves. This one however, didn't. Fifty four hours it took before a surgeon managed to pass a catheter through my…