Happy New Year!
Happy New Year to you all, here's to a better year in 2015!The year is not ending on a good note, but it does end with a grateful heart. Thank you to all of my wonderful friends and family for…
Happy New Year to you all, here's to a better year in 2015!The year is not ending on a good note, but it does end with a grateful heart. Thank you to all of my wonderful friends and family for…
Merry Christmas to my wonderful followers and friends You not only support and care for me, but you have helped to bring my message and my experiences to a greater and greater audience. We're up to 67,000 views already, in under…
Christmas is a time for sharing and giving and being with family and friends. Christmas day arrives and the celebrations begin. Please spare a thought for those who will not be able to sit and enjoy a Christmas dinner with…
It’s that time of year again: it’s Christmas time. Where has 2014 gone? It seems like yesterday that mum took the decorations down, and now they’re going to go back up again. Christmas is a difficult time for many people for…
Thursday 27th November 2014 ~ Today I went to the children's palliative care conference "Leaders of Care - for equity, effectiveness and efficiency in children’s palliative care" run by Together for Short Lives to give a speech with my hospice nurse on transition.…
Bev (left), Mum Kate and I22nd November 2014 - I attended The J's Hospice Charity Ball in the role of guest speaker and had a wonderful night. I spoke about my care from The J's and how they have helped…
19th November 2014 - I gave a speech at the Children's Health and Wellbeing Partnership Takeover Day at the Department of Health. The event was organised to draw together important paediatric and child health professionals with young people and to work together…
Chronic Intestinal Pseudo ObstructionChronic Intestinal Pseudo Obstruction. Quite a mouthful, huh? Believe me, it's a lot harder to live with than it is to say it. Chronic Intestinal Pseudo Obstruction (abbreviated CIPs or CIPO) is a condition of the digestive tract…
I look out of my windowAnd stare up at the skyI wonder if you’re up thereOh sweet old dog of mineIn blew just one white featherA sign as if to sayNever fear, for I am hereI never went awayFrom my…
Fifty-five thousand. 55,000! That’s how many views this blog has amassed at the time of writing this post. 55,000 people over the past 22 months have read my blog, or at least one of my posts. That’s 55,000 people educated…