Crufts Friends for Life Winners
The weekend before last, from the 6th - 10th March we were at Crufts. Many people had nominated Molly for the Friends for Life award for changing my life, and we had become one of 5 finalists. Then the British…
The weekend before last, from the 6th - 10th March we were at Crufts. Many people had nominated Molly for the Friends for Life award for changing my life, and we had become one of 5 finalists. Then the British…
To vote for Molly and I call 0844 646 0202. Calls cost 5p from a landline and you can vote more than once. All votes will be greatly appreciated. thank you
Today is rare disease day. I have a few rare diseases, so jeans for genes day is very important. Ehlers-Danlos Syndrome, though the hypermobility type is becoming more common, is considered a rare disease with a prevalence of 1 in…
I was asked to write a piece by the National Council for Palliative Care and Together for Short Lives about whether young people with life limiting conditions want to talk about their end of life, and if so, why, where, with who and how, and if…
Why is death such a taboo? It's the only thing guaranteed in life. Everyone knows they will die at some point or another. So why do we shy away from it? Whatever your beliefs, it will happen. Some people die…
I have been through a lot in my twenty years. I lived a somewhat normal life for fourteen of them - just fourteen years - until my life was inexplicably changed. I am lucky for those fourteen years though, as…