December 2018 – Lucy Watts MBE / Lucy Watts Ltd

2018 – What A Year! & Looking Ahead to 2019

December 30, 2018
Lucy Watts MBE
advocate, assistance dog, award, awareness, Barbican, BBC, biopsy, birthday, Blog, BLOG, budget, care, Carers, central line, charity, chronic illness, collaborative care, complex needs, continuing health, cope, coping, coproduction, death, deterioration, diagnosis, digital legacy, disability, disability rights, disabled, doctor, documentary, dog, dog aid, Dr Tedros, end of life, Executive Board, family, festival, festival spirit, friend, fundraising, future, grateful, health, healthcare, honorary degree, honorary masters, hope, hospice, Hospice UK, hospital, House of Lords, human rights, IHUG, illness, Inspiration, interview, intestinal failure, investiture, legacy, life expectancy, life limiting, life threatening, lucy's light, MBE, mitochondrial, Molly, mother, mum, neuromuscular disorder, NHS, NMCCC, nurse, nurses, nursing, Open University, pain, palliative, palliative care, parliament, patient group, Patient Leader, patient network, Peer Leadership Academy, personal health budget, personalised care, PHB, Public Involvement, quality of life, rare disease, sepsis, septicaemia, sexuality, social network, speech, st christopher's, surgery, The J's Hospice, TPN, transition, TweetChat, unpaid carers, user group, video, WHO, WHPCA, WOMAD, World Health Organisation, year review, young people
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What a year 2018 has been. Such highs, such lows, but overall, it’s been an incredible year. I have had such fun, achieved a lot, received recognition for my work, been involved with even more work and projects, I’ve given…

Caldicott Principles & Information Sharing At End Of Life – Blog Adaptation Of My Speech

December 13, 2018
Lucy Watts MBE
advocate, artificial nutrition, Blog, BLOG, budget, Caldicott, care, Carers, chronic illness, collaborative care, complex needs, continuing health, death, deterioration, diagnosis, digital, disability, end of life, family, health, healthcare, hospice, hospital, illness, information sharing, life limiting, life threatening, mother, NHS, nurse, nurses, nursing, palliative, palliative care, personal health budget, personalised care, PHB, quality of life, speech, TPN, unpaid carers, young people
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Introduction: This blog is an adaptation of a speech I gave at a Healthcare Conferences UK (HC UK) conference on information sharing for patients and families, and across services at end of life, delivered at the “Caldicott End Of Life…

International Day of Persons with Disabilities – 3rd December

December 3, 2018
Lucy Watts MBE
advocate, awareness, benefits, Blog, BLOG, care, Carers, charity, children, chronic illness, complex needs, coproduction, disability, Disability Discrimination Act, disability rights, disabled, discrimination, equality act, future, health, healthcare, human rights, illness, legacy, parliament, patient group, Patient Leader, patient network, politics, Public Involvement, quality of life, representative, rights, sexuality, spokesperson, unpaid carers, wheelchair
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Today, 3rd December, is the International Day of Persons with Disabilities. As a woman with a disability living in the UK, I wanted to write a blog to celebrate this day and talk about some issues that are important to…