Today I had the greatest pleasure of a personal meeting with Dr Tedros, Director General of the World Health Organisation (WHO) regarding my palliative care advocacy work and ensuring that palliative care gets included in universal health coverage packages. The…
Last week, it was the World Health Organisation (WHO) Executive Board. The WHO is an international organisation who direct and coordinate international health within the United Nations’ system. The Worldwide Hospice Palliative Care Alliance (WHPCA) and International Association for Hospice…
2017 has been an incredible year, I feel truly privileged for all the opportunities I’ve received, all the new roles and projects, all the experiences, places I’ve been, things I’ve done, people I’ve met. This year Molly and I started…
Today I had an absolutely amazing day at the Patient Leadership Workshop Event run by Health Education East of England, East of England NHS Leadership Academy and The Eastern Academic Health Science Network. It was an event to bring together…
On Friday 10th November 2017 a very special event took place. Hosted by the Queen's Nursing Institute (QNI) with support from the Burdett Trust, the QNI Transition of Care Conference was a great success. It brought together nurses, healthcare professionals…
I’m a 24 year old young lady with a life-limiting condition that has caused complex physical and medical needs. I am completely dependent on a specialist electric wheelchair, although forced to spend a lot of time in bed, I require…
(c) UK Sepsis TrustSeptember is Sepsis Awareness Month and Wednesday 13th September is this year's World Sepsis Day. My family has been touched by sepsis a number of times. We know too well how serious sepsis is. There’s an estimated…
One year ago today, Molly qualified as my Assistance Dog. What was almost three years of hard work, culminated in us passing our level 3 assessment. I will admit, there were times where I thought Molly would never make it. We…
So, last week (6th-12th August) was International Assistance Dog Week. IADW is an awareness week educating others about Assistance Dogs and what they do and celebrates how they transform lives. Molly and I have done all we can to raise awareness…
Charlie Gard. A little boy whose care has polarised the world. A little boy with a severe condition called infantile encephalomyopathic Mitochondrial DNA Depletion Syndrome. He sadly passed away last week. His doctors for months had wanted to remove his…