artificial nutrition – Lucy Watts MBE / Lucy Watts Ltd

Lucy named 2020 Digital Leader of the Year

October 15, 2020
Lucy Watts MBE
advocate, artificial nutrition, award, chronic illness, collaborative care, communication, complex needs, coproduction, death, deterioration, digital, Digital Leaders 100, digital legacy, disability, disability rights, empowerment, end of life, festival spirit, health, healthcare, hospice, illness, information sharing, life limiting, life threatening, NHS, NHS Assembly, NHS England, NHS Long Term Plan, nurses, nursing, palliative, palliative care, patient activation, patient experience, patient group, Patient Leader, patient network, peer leader, personal health budget, personalised care, Public Involvement, quality of life, representative, social media, social network, social services, spokesperson, TEDx, user group, WHO, WHPCA, World Health Organisation, young people
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Lucy has been named the 2020 Digital Leader of the Year by Digi Leaders. Lucy said: "It's a true honour to have been awarded - and considered worthy of - the 2020 Digital Leader of the Year in the DL100.…

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International Wheelchair Day – 1st March 2020

March 1, 2020
Lucy Watts MBE
access, advance care plan, artificial nutrition, assistance dog, awareness, BLOG, Blog, Buckingham Palace, care, care package, central line, chronic illness, complex needs, coping, deterioration, diagnosis, disability, Disability Power 100, disability rights, disabled, discrimination, dog, empowerment, equality act, family, festival, fundraising, GCSE, health, healthcare, honorary degree, honorary masters, hospice, hospital, illness, Inspiration, intestinal failure, life limiting, life threatening, MBE, Molly, neuromuscular disorder, NHS, NHS England, nursing, Open University, pain, palliative, palliative care, parliament, patient experience, Patient Leader, peer leader, personal health budget, personalised care, politics, Power List, quality of life, rare disease, rights, social services, speech, TPN, tube feeding, tubes, wheelchair, WOMAD, young people
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Today it’s International Wheelchair Day and it celebrates the life-enhancing and life-changing benefits of having the right wheelchair, and celebrating the individuals who rely upon this piece of equipment to mobilise and live their lives to the fullest. I’ve…

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My TEDxNHS Talk is live! “One Sentence That Transformed My Life”

January 22, 2020
Lucy Watts MBE
advance care plan, Advance Decision, advocate, artificial nutrition, assistance dog, awareness, care, care package, care planning, Carers, collaborative care, communication, complex needs, cope, coping, deterioration, diagnosis, digital legacy, disability, disabled, DNACPR, empowerment, end of life, future, grief, health, healthcare, hope, hospice, hospital, illness, Inspiration, intestinal failure, Lasting Power of Attorney, legacy, life after death, life expectancy, life limiting, life threatening, listen, lucy's light, mitochondrial, Molly, NHS, NHS Assembly, NHS England, NHS Long Term Plan, nurse, nurses, nursing, pain, palliative, palliative care, patient activation, patient experience, personalised care, personalised care and support plan, quality of life, rare disease, sepsis, spokesperson, TEDx, TEDxNHS, TPN, video, World Health Organisation, young people
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2019 Review Blog – What A Year!

December 28, 2019
Lucy Watts MBE
advance care plan, advocate, artificial nutrition, assistance dog, awareness, BBC, benefits, BLOG, Blog, budget, care, care package, care planning, Carers, collaborative care, commissioning, communication, complex needs, continuing health, cope, coping, coproduction, death, deterioration, diagnosis, digital, digital legacy, disability, Disability Power 100, disability rights, disabled, DNACPR, doctor, documentary, dog, empowerment, end of life, family, festival, festival spirit, future, grateful, grief, health, healthcare, honorary degree, honorary masters, hope, hospice, Hospice UK, hospital, human rights, illness, information sharing, Inspiration, interview, intestinal failure, Lasting Power of Attorney, laugh, legacy, life expectancy, life limiting, life threatening, lucy's light, MBE, Molly, mother, mum, NHS, NHS Assembly, NHS England, NHS Long Term Plan, nurse, nurses, nursing, Open University, pain, palliative, palliative care, patient activation, patient experience, patient group, Patient Leader, patient network, peer leader, Peer Leadership Academy, personal health budget, personalised care, personalised care and support plan, PHB, podcast, politics, PORT, Power List, pseudo obstruction, Public Involvement, quality of life, rare disease, research, rights, sepsis, sexuality, Shaw Trust, sister, social media, social network, social services, speech, spokesperson, st christopher's, TEDx, TEDxNHS, TPN, transition, unpaid carers, user group, video, vlog, WHPCA, WOMAD, year review, young people
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Well, what a year 2019 has been. Not the best on the health front by any stretch of the imagination, but an incredible year in many other ways. This year is the year I was announced as the 9th most…

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Becoming a TEDx Speaker – TEDxNHS 2019

October 6, 2019
Lucy Watts MBE
advance care plan, Advance Decision, advocate, artificial nutrition, assistance dog, BLOG, care, care planning, communication, complex needs, death, deterioration, diagnosis, digital legacy, disability, DNACPR, end of life, family, health, healthcare, honorary degree, honorary masters, hope, hospice, hospital, Lasting Power of Attorney, life expectancy, life limiting, life threatening, MBE, Molly, mother, mum, NHS, NHS Assembly, NHS England, nurse, nursing, pain, palliative, palliative care, patient experience, Patient Leader, patient network, personalised care, quality of life, sepsis, speech, TEDx, TEDxNHS, Together for short lives, TPN
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On Friday 4th October, I became a TEDx speaker. I became part of a group of accomplished speakers with an international reach. I ticked an item off my bucket list. I discovered so much about myself. TEDxNHS is an event…

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Meeting 2 of the NHS Assembly: Supporting Carers, Workforce and Environmental Impact

July 6, 2019
Lucy Watts MBE
access, advocate, artificial nutrition, assistance dog, BLOG, care, care package, care planning, Carers, children, collaborative care, communication, complex needs, continuing health, coproduction, digital, disability, discrimination, doctor, education, empowerment, future, GP, health, healthcare, hospital, NHS, NHS Assembly, NHS England, NHS Long Term Plan, nurse, nurses, nursing, palliative care, patient experience, Patient Leader, peer leader, personal health budget, personalised care, PHB, politics, primary care, Public Involvement, unpaid carers, young carers, young people
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I’ll start this blog with “Happy 71st Birthday NHS!”. What an institution our NHS is, and what it achieves, I’m living proof of the success of our NHS, despite the challenges it faces. If you want to know what the…

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Mid & South Essex Personalised Care & PHB Event – 6th June 2019

June 6, 2019
Lucy Watts MBE
advocate, artificial nutrition, assistance dog, awareness, BLOG, budget, care, care package, care planning, Carers, children, collaborative care, commissioning, communication, community nurse, complex needs, continuing health, coproduction, deterioration, disability, empowerment, family, GP, health, healthcare, hospital, illness, information sharing, life limiting, life threatening, NHS, NHS Assembly, NHS Long Term Plan, nursing, pain, palliative, palliative care, patient activation, patient experience, patient group, Patient Leader, patient network, peer leader, Peer Leadership Academy, personal health budget, personalised care, personalised care and support plan, PHB, primary care, Public Involvement, quality of life, social services, transition, unpaid carers, user group
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Today I co-facilitated an event with the NHS England PHB Eastern Region Lead, Sarah Walker, with the event organised by Sarah, the NHS England Personalised Care Team/Managers and with support from myself. With Essex having one of the lowest uptakes…

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Dying Matters Week 2019 – Are We Ready? Our Short Films

May 18, 2019
Lucy Watts MBE
advance care plan, Advance Decision, advocate, artificial nutrition, awareness, awareness week, bereavement, BLOG, care, care planning, Carers, communication, complex needs, continuing health, cope, coping, death, deterioration, diagnosis, digital legacy, disability, DNACPR, Dr Kathryn Mannix, Dying Matters, end of life, family, future, grateful, grief, health, healthcare, hope, hospice, Hospice UK, hospital, illness, life expectancy, life limiting, life threatening, loss, love, mother, mum, nurse, nurses, nursing, pain, palliative, palliative care, patient activation, patient experience, personal health budget, personalised care, quality of life, rare disease, sepsis, TPN, unpaid carers, young people
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This week it has been Dying Matters Week 2019; 13th-19th May. The theme this year was “Are We Ready?” and what a great theme it is, as we really aren’t ready and we need to be. Dying Matters Awareness Week…

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#OpenUpHospiceCare 2019

March 7, 2019
Lucy Watts MBE
advocate, artificial nutrition, awareness, awareness week, Blog, BLOG, care, charity, chronic illness, complex needs, coping, death, deterioration, disability, end of life, family, fundraising, health, healthcare, hospice, Hospice UK, hospital, illness, intestinal failure, life expectancy, life limiting, life threatening, loss, love, mother, mum, NHS, nurse, nurses, nursing, pain, palliative, palliative care, personalised care, quality of life, The J's Hospice, TPN, young people
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This week it’s #OpenUpHospiceCare week, run by Hospice UK. A successful campaign that seeks to break down myths surrounding hospice care, raise awareness of the amazing work of hospices and to secure support for hospices and encourage communities to get…

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Rare Disease Day 2019 – What Rare Means For Me

February 28, 2019
Lucy Watts MBE
artificial nutrition, awareness, BLOG, Blog, central line, chronic illness, CIPO, complex needs, deterioration, diagnosis, disability, end of life, health, healthcare, hospice, illness, intestinal failure, life expectancy, life limiting, life threatening, mitochondrial, neuromuscular disorder, NHS, nursing, palliative, palliative care, pseudo obstruction, quality of life, rare disease, rare disease day, sepsis, stoma, TPN, wheelchair, zebra
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Today is Rare Disease Day 2019, celebrating people living with, and raising awareness of rare diseases. There are between 6000 and 8000 rare diseases, with new ones being discovered on a regular basis and equally more and more already known…

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