What if we viewed lived experience as an asset? As an asset of professional, economic, political, financial and social value? “Lived experience” is a term often used in health and social care to denote the personal experience of people living…
I am delighted to announce I have made the Digital Leaders 100 List in the Digital Leader of the Year category. The Digital Leaders list recognises leaders who are working hard to advance and secure digital transformation and are using…
On Tuesday 8th October 2019 the 2019 Shaw Trust Disability Power 100 List was announced at a launch event in the House of Lords. Sadly I was unable to attend - I have been poorly this week with a chest…
On Friday 18th January I was invited by Healthcare Conferences UK as part of my role within the Hospice UK People in Partnership Forum to deliver the first speech at their conference titled “Care of Dying Adults in the Last…
This week it’s #OpenUpHospiceCare week, run by Hospice UK. A successful campaign that seeks to break down myths surrounding hospice care, raise awareness of the amazing work of hospices and to secure support for hospices and encourage communities to get…
What a year 2018 has been. Such highs, such lows, but overall, it’s been an incredible year. I have had such fun, achieved a lot, received recognition for my work, been involved with even more work and projects, I’ve given…
Today, 3rd December, is the International Day of Persons with Disabilities. As a woman with a disability living in the UK, I wanted to write a blog to celebrate this day and talk about some issues that are important to…
Recently two people got in touch with me and asked me a question about my thoughts on the future of hospices and hospice care. I spent about 2-2.5 hours thinking, brainstorming, and writing everything down in an email response. However,…
This week it was announced that I had been named as one of the 100 most influential disabled people in Britain, on the Shaw Trust Disability Power 100 List. What is the Disability Power 100 List? The Shaw Trust Power…
This week it’s Hospice Care Week. All of you know I am a palliative and hospice care advocate having been a beneficiary of such services since I was 17. You all know my story, being born with health problems and…