chronic illness – Lucy Watts MBE / Lucy Watts Ltd

Presenteeism, disabled people and people with long-term health conditions

July 28, 2021
Lucy Watts MBE
access, assistance dog, BLOG, Blog, chronic illness, depression, deterioration, disability, disability rights, disabled, employment, equality act, health, illness, life limiting, life threatening, pain, palliative care, rights, self-employment
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Today I read this article in the New Statesman, talking about presenteeism — when people work whilst sick, even when they shouldn’t be. The New Statesman article author (Harry Clarke-Ezzidio) takes this into consideration for the general population, but I wanted…

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Young Innovator Award Winner 2020/21

January 12, 2021
Lucy Watts MBE
award, awareness, Blog, Business, care, care package, care planning, Carers, children, chronic illness, collaborative care, communication, complex needs, continuing health, coproduction, COVID, death, deterioration, diagnosis, digital, Digital Leaders 100, digital legacy, disability, disability rights, disabled, doctor, education, empowerment, end of life, family, future, health, healthcare, hospice, hospital, human rights, illness, information sharing, Inspiration, internet, life expectancy, life limiting, life threatening, listen, Lived Experience Learning, News, NHS, nurses, nursing, pain, palliative, palliative care, patient activation, patient experience, patient group, Patient Leader, patient network, peer leader, personal health budget, personalised care, personalised care and support plan, PHB, primary care, Public Involvement, quality of life, rare disease, representative, research, rights, sepsis, social media, social network, social services, spokesperson, surgery, TPN, transition, tube feeding, unpaid carers, user group, video, wheelchair, young carers, young people
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I am excited to announce I am part of the 2020/21 cohort of the Innovate UK Young Innovators Awards. What a real privilege this is to be considered worthy among such amazing innovators. I am part of the cohort due…

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Lucy named 2020 Digital Leader of the Year

October 15, 2020
Lucy Watts MBE
advocate, artificial nutrition, award, chronic illness, collaborative care, communication, complex needs, coproduction, death, deterioration, digital, Digital Leaders 100, digital legacy, disability, disability rights, empowerment, end of life, festival spirit, health, healthcare, hospice, illness, information sharing, life limiting, life threatening, NHS, NHS Assembly, NHS England, NHS Long Term Plan, nurses, nursing, palliative, palliative care, patient activation, patient experience, patient group, Patient Leader, patient network, peer leader, personal health budget, personalised care, Public Involvement, quality of life, representative, social media, social network, social services, spokesperson, TEDx, user group, WHO, WHPCA, World Health Organisation, young people
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Lucy has been named the 2020 Digital Leader of the Year by Digi Leaders. Lucy said: "It's a true honour to have been awarded - and considered worthy of - the 2020 Digital Leader of the Year in the DL100.…

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Making The Digital Leaders 100 List – Will You Vote For Me?

June 20, 2020
Lucy Watts MBE
advocate, award, awareness, BLOG, Blog, care, charity, chronic illness, collaborative care, communication, complex needs, continuing health, coproduction, death, digital, Digital Leaders 100, digital legacy, disability, disability rights, empowerment, end of life, family, healthcare, hospice, illness, information sharing, internet, legacy, life limiting, life threatening, listen, lucy's light, NHS, NHS England, nursing, pain, palliative, palliative care, patient activation, patient experience, patient group, Patient Leader, patient network, peer leader, personal health budget, personalised care, PHB, politics, Public Involvement, rare disease, research, rights, social media, social network, speech, spokesperson, TEDx
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I am delighted to announce I have made the Digital Leaders 100 List in the Digital Leader of the Year category. The Digital Leaders list recognises leaders who are working hard to advance and secure digital transformation and are using…

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International Wheelchair Day – 1st March 2020

March 1, 2020
Lucy Watts MBE
access, advance care plan, artificial nutrition, assistance dog, awareness, Blog, BLOG, Buckingham Palace, care, care package, central line, chronic illness, complex needs, coping, deterioration, diagnosis, disability, Disability Power 100, disability rights, disabled, discrimination, dog, empowerment, equality act, family, festival, fundraising, GCSE, health, healthcare, honorary degree, honorary masters, hospice, hospital, illness, Inspiration, intestinal failure, life limiting, life threatening, MBE, Molly, neuromuscular disorder, NHS, NHS England, nursing, Open University, pain, palliative, palliative care, parliament, patient experience, Patient Leader, peer leader, personal health budget, personalised care, politics, Power List, quality of life, rare disease, rights, social services, speech, TPN, tube feeding, tubes, wheelchair, WOMAD, young people
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Today it’s International Wheelchair Day and it celebrates the life-enhancing and life-changing benefits of having the right wheelchair, and celebrating the individuals who rely upon this piece of equipment to mobilise and live their lives to the fullest. I’ve…

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Care of Dying Adults – Blog Adaption Of My Speech

March 24, 2019
Lucy Watts MBE
advance care plan, Advance Decision, advocate, bereavement, BLOG, budget, care, care package, care planning, Carers, charity, chronic illness, collaborative care, commissioning, communication, community nurse, complex needs, continuing health, cope, coping, death, deterioration, disability, disabled, DNACPR, Dr Kathryn Mannix, empowerment, end of life, family, future, GP, grief, health, healthcare, hope, hospice, Hospice UK, hospital, illness, information sharing, Lasting Power of Attorney, life expectancy, life limiting, life threatening, mother, mum, NHS, NICE, nursing, palliative, palliative care, patient activation, patient experience, personalised care, personalised care and support plan, PHB, primary care, quality of life, speech, The J's Hospice, young people
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On Friday 18th January I was invited by Healthcare Conferences UK as part of my role within the Hospice UK People in Partnership Forum to deliver the first speech at their conference titled “Care of Dying Adults in the Last…

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#OpenUpHospiceCare 2019

March 7, 2019
Lucy Watts MBE
advocate, artificial nutrition, awareness, awareness week, BLOG, Blog, care, charity, chronic illness, complex needs, coping, death, deterioration, disability, end of life, family, fundraising, health, healthcare, hospice, Hospice UK, hospital, illness, intestinal failure, life expectancy, life limiting, life threatening, loss, love, mother, mum, NHS, nurse, nurses, nursing, pain, palliative, palliative care, personalised care, quality of life, The J's Hospice, TPN, young people
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This week it’s #OpenUpHospiceCare week, run by Hospice UK. A successful campaign that seeks to break down myths surrounding hospice care, raise awareness of the amazing work of hospices and to secure support for hospices and encourage communities to get…

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Rare Disease Day 2019 – What Rare Means For Me

February 28, 2019
Lucy Watts MBE
artificial nutrition, awareness, Blog, BLOG, central line, chronic illness, CIPO, complex needs, deterioration, diagnosis, disability, end of life, health, healthcare, hospice, illness, intestinal failure, life expectancy, life limiting, life threatening, mitochondrial, neuromuscular disorder, NHS, nursing, palliative, palliative care, pseudo obstruction, quality of life, rare disease, rare disease day, sepsis, stoma, TPN, wheelchair, zebra
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Today is Rare Disease Day 2019, celebrating people living with, and raising awareness of rare diseases. There are between 6000 and 8000 rare diseases, with new ones being discovered on a regular basis and equally more and more already known…

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2018 – What A Year! & Looking Ahead to 2019

December 30, 2018
Lucy Watts MBE
advocate, assistance dog, award, awareness, Barbican, BBC, biopsy, birthday, Blog, BLOG, budget, care, Carers, central line, charity, chronic illness, collaborative care, complex needs, continuing health, cope, coping, coproduction, death, deterioration, diagnosis, digital legacy, disability, disability rights, disabled, doctor, documentary, dog, dog aid, Dr Tedros, end of life, Executive Board, family, festival, festival spirit, friend, fundraising, future, grateful, health, healthcare, honorary degree, honorary masters, hope, hospice, Hospice UK, hospital, House of Lords, human rights, IHUG, illness, Inspiration, interview, intestinal failure, investiture, legacy, life expectancy, life limiting, life threatening, lucy's light, MBE, mitochondrial, Molly, mother, mum, neuromuscular disorder, NHS, NMCCC, nurse, nurses, nursing, Open University, pain, palliative, palliative care, parliament, patient group, Patient Leader, patient network, Peer Leadership Academy, personal health budget, personalised care, PHB, Public Involvement, quality of life, rare disease, sepsis, septicaemia, sexuality, social network, speech, st christopher's, surgery, The J's Hospice, TPN, transition, TweetChat, unpaid carers, user group, video, WHO, WHPCA, WOMAD, World Health Organisation, year review, young people
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What a year 2018 has been. Such highs, such lows, but overall, it’s been an incredible year. I have had such fun, achieved a lot, received recognition for my work, been involved with even more work and projects, I’ve given…

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Caldicott Principles & Information Sharing At End Of Life – Blog Adaptation Of My Speech

December 13, 2018
Lucy Watts MBE
advocate, artificial nutrition, BLOG, Blog, budget, Caldicott, care, Carers, chronic illness, collaborative care, complex needs, continuing health, death, deterioration, diagnosis, digital, disability, end of life, family, health, healthcare, hospice, hospital, illness, information sharing, life limiting, life threatening, mother, NHS, nurse, nurses, nursing, palliative, palliative care, personal health budget, personalised care, PHB, quality of life, speech, TPN, unpaid carers, young people
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Introduction: This blog is an adaptation of a speech I gave at a Healthcare Conferences UK (HC UK) conference on information sharing for patients and families, and across services at end of life, delivered at the “Caldicott End Of Life…

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