coping – Lucy Watts MBE / Lucy Watts Ltd

Lucy’s Light – new blog for a new stage of my life

February 24, 2021
Lucy Watts MBE
advance care plan, Advance Decision, BLOG, Blog, care planning, communication, complex needs, cope, coping, deterioration, disability, DNACPR, end of life, family, fear, future, grateful, grief, grieving process, health, healthcare, hope, hospice, hospital, illness, Inspiration, Lasting Power of Attorney, legacy, life expectancy, life limiting, life threatening, listen, loss, love, lucy's light, NHS, nursing, pain, palliative, palliative care, personalised care, quality of life, young people
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I’ve decided to start a new blog to share my personal journey and experiences at a difficult time in our lives. You can find it at: www.lucyslight.co.uk The reason for this new blog is a recent change in my health.…

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These are our realities, and we are the casualties – COVID-19

March 26, 2020
Lucy Watts MBE
advance care plan, Advance Decision, advocate, assistance dog, awareness, Blog, BLOG, care, care package, care planning, Carers, central line, communication, community nurse, complex needs, cope, coping, COVID, death, deterioration, disability, doctor, end of life, family, grief, health, healthcare, hope, hospice, hospital, illness, intestinal failure, Lasting Power of Attorney, life expectancy, life limiting, life threatening, mitochondrial, Molly, mother, neuromuscular disorder, NHS, nurse, nurses, nursing, pain, palliative, palliative care, patient experience, personal health budget, personalised care, primary care, quality of life, rare disease, TPN, unpaid carers
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This blog is part writing therapy, part rant, part activism, part distress, part processing, part making peace. It flicks seamlessly between all of the above, so you never know quite what ‘part’ you’re in when you read it, heck sometimes…

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International Wheelchair Day – 1st March 2020

March 1, 2020
Lucy Watts MBE
access, advance care plan, artificial nutrition, assistance dog, awareness, BLOG, Blog, Buckingham Palace, care, care package, central line, chronic illness, complex needs, coping, deterioration, diagnosis, disability, Disability Power 100, disability rights, disabled, discrimination, dog, empowerment, equality act, family, festival, fundraising, GCSE, health, healthcare, honorary degree, honorary masters, hospice, hospital, illness, Inspiration, intestinal failure, life limiting, life threatening, MBE, Molly, neuromuscular disorder, NHS, NHS England, nursing, Open University, pain, palliative, palliative care, parliament, patient experience, Patient Leader, peer leader, personal health budget, personalised care, politics, Power List, quality of life, rare disease, rights, social services, speech, TPN, tube feeding, tubes, wheelchair, WOMAD, young people
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Today it’s International Wheelchair Day and it celebrates the life-enhancing and life-changing benefits of having the right wheelchair, and celebrating the individuals who rely upon this piece of equipment to mobilise and live their lives to the fullest. I’ve…

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My TEDxNHS Talk is live! “One Sentence That Transformed My Life”

January 22, 2020
Lucy Watts MBE
advance care plan, Advance Decision, advocate, artificial nutrition, assistance dog, awareness, care, care package, care planning, Carers, collaborative care, communication, complex needs, cope, coping, deterioration, diagnosis, digital legacy, disability, disabled, DNACPR, empowerment, end of life, future, grief, health, healthcare, hope, hospice, hospital, illness, Inspiration, intestinal failure, Lasting Power of Attorney, legacy, life after death, life expectancy, life limiting, life threatening, listen, lucy's light, mitochondrial, Molly, NHS, NHS Assembly, NHS England, NHS Long Term Plan, nurse, nurses, nursing, pain, palliative, palliative care, patient activation, patient experience, personalised care, personalised care and support plan, quality of life, rare disease, sepsis, spokesperson, TEDx, TEDxNHS, TPN, video, World Health Organisation, young people
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2019 Review Blog – What A Year!

December 28, 2019
Lucy Watts MBE
advance care plan, advocate, artificial nutrition, assistance dog, awareness, BBC, benefits, BLOG, Blog, budget, care, care package, care planning, Carers, collaborative care, commissioning, communication, complex needs, continuing health, cope, coping, coproduction, death, deterioration, diagnosis, digital, digital legacy, disability, Disability Power 100, disability rights, disabled, DNACPR, doctor, documentary, dog, empowerment, end of life, family, festival, festival spirit, future, grateful, grief, health, healthcare, honorary degree, honorary masters, hope, hospice, Hospice UK, hospital, human rights, illness, information sharing, Inspiration, interview, intestinal failure, Lasting Power of Attorney, laugh, legacy, life expectancy, life limiting, life threatening, lucy's light, MBE, Molly, mother, mum, NHS, NHS Assembly, NHS England, NHS Long Term Plan, nurse, nurses, nursing, Open University, pain, palliative, palliative care, patient activation, patient experience, patient group, Patient Leader, patient network, peer leader, Peer Leadership Academy, personal health budget, personalised care, personalised care and support plan, PHB, podcast, politics, PORT, Power List, pseudo obstruction, Public Involvement, quality of life, rare disease, research, rights, sepsis, sexuality, Shaw Trust, sister, social media, social network, social services, speech, spokesperson, st christopher's, TEDx, TEDxNHS, TPN, transition, unpaid carers, user group, video, vlog, WHPCA, WOMAD, year review, young people
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Well, what a year 2019 has been. Not the best on the health front by any stretch of the imagination, but an incredible year in many other ways. This year is the year I was announced as the 9th most…

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Lucy’s Light Vlog – Come With Me On A Busy Week In My Life (15th to 20th September 2019)

September 28, 2019
Lucy Watts MBE
advance care plan, Advance Decision, advocate, assistance dog, BLOG, care planning, Carers, commissioning, communication, complex needs, continuing health, cope, coping, coproduction, death, deterioration, disability, disability rights, DNACPR, end of life, family, fear, future, grateful, grief, health, healthcare, hospice, illness, information sharing, Inspiration, Lasting Power of Attorney, legacy, life limiting, life threatening, lucy's light, Molly, mother, mum, NHS, NHS England, NHS Long Term Plan, NICE, nursing, pain, palliative, palliative care, patient activation, patient experience, Patient Leader, peer leader, personal health budget, personalised care, personalised care and support plan, PHB, Public Involvement, quality of life, sepsis, speech, The J's Hospice, transition, unpaid carers, vlog, young people
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Come along with me on a week of my life, covering 15th-20th September, in which I had a very full-on time, various Skype calls/conferences, leading a virtual workshop, 3 separate speeches, and an NHS England meeting, and everything I got…

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Dying Matters Week 2019 – Are We Ready? Our Short Films

May 18, 2019
Lucy Watts MBE
advance care plan, Advance Decision, advocate, artificial nutrition, awareness, awareness week, bereavement, BLOG, care, care planning, Carers, communication, complex needs, continuing health, cope, coping, death, deterioration, diagnosis, digital legacy, disability, DNACPR, Dr Kathryn Mannix, Dying Matters, end of life, family, future, grateful, grief, health, healthcare, hope, hospice, Hospice UK, hospital, illness, life expectancy, life limiting, life threatening, loss, love, mother, mum, nurse, nurses, nursing, pain, palliative, palliative care, patient activation, patient experience, personal health budget, personalised care, quality of life, rare disease, sepsis, TPN, unpaid carers, young people
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This week it has been Dying Matters Week 2019; 13th-19th May. The theme this year was “Are We Ready?” and what a great theme it is, as we really aren’t ready and we need to be. Dying Matters Awareness Week…

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Care of Dying Adults – Blog Adaption Of My Speech

March 24, 2019
Lucy Watts MBE
advance care plan, Advance Decision, advocate, bereavement, BLOG, budget, care, care package, care planning, Carers, charity, chronic illness, collaborative care, commissioning, communication, community nurse, complex needs, continuing health, cope, coping, death, deterioration, disability, disabled, DNACPR, Dr Kathryn Mannix, empowerment, end of life, family, future, GP, grief, health, healthcare, hope, hospice, Hospice UK, hospital, illness, information sharing, Lasting Power of Attorney, life expectancy, life limiting, life threatening, mother, mum, NHS, NICE, nursing, palliative, palliative care, patient activation, patient experience, personalised care, personalised care and support plan, PHB, primary care, quality of life, speech, The J's Hospice, young people
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On Friday 18th January I was invited by Healthcare Conferences UK as part of my role within the Hospice UK People in Partnership Forum to deliver the first speech at their conference titled “Care of Dying Adults in the Last…

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#OpenUpHospiceCare 2019

March 7, 2019
Lucy Watts MBE
advocate, artificial nutrition, awareness, awareness week, BLOG, Blog, care, charity, chronic illness, complex needs, coping, death, deterioration, disability, end of life, family, fundraising, health, healthcare, hospice, Hospice UK, hospital, illness, intestinal failure, life expectancy, life limiting, life threatening, loss, love, mother, mum, NHS, nurse, nurses, nursing, pain, palliative, palliative care, personalised care, quality of life, The J's Hospice, TPN, young people
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This week it’s #OpenUpHospiceCare week, run by Hospice UK. A successful campaign that seeks to break down myths surrounding hospice care, raise awareness of the amazing work of hospices and to secure support for hospices and encourage communities to get…

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2018 – What A Year! & Looking Ahead to 2019

December 30, 2018
Lucy Watts MBE
advocate, assistance dog, award, awareness, Barbican, BBC, biopsy, birthday, Blog, BLOG, budget, care, Carers, central line, charity, chronic illness, collaborative care, complex needs, continuing health, cope, coping, coproduction, death, deterioration, diagnosis, digital legacy, disability, disability rights, disabled, doctor, documentary, dog, dog aid, Dr Tedros, end of life, Executive Board, family, festival, festival spirit, friend, fundraising, future, grateful, health, healthcare, honorary degree, honorary masters, hope, hospice, Hospice UK, hospital, House of Lords, human rights, IHUG, illness, Inspiration, interview, intestinal failure, investiture, legacy, life expectancy, life limiting, life threatening, lucy's light, MBE, mitochondrial, Molly, mother, mum, neuromuscular disorder, NHS, NMCCC, nurse, nurses, nursing, Open University, pain, palliative, palliative care, parliament, patient group, Patient Leader, patient network, Peer Leadership Academy, personal health budget, personalised care, PHB, Public Involvement, quality of life, rare disease, sepsis, septicaemia, sexuality, social network, speech, st christopher's, surgery, The J's Hospice, TPN, transition, TweetChat, unpaid carers, user group, video, WHO, WHPCA, WOMAD, World Health Organisation, year review, young people
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What a year 2018 has been. Such highs, such lows, but overall, it’s been an incredible year. I have had such fun, achieved a lot, received recognition for my work, been involved with even more work and projects, I’ve given…

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