death – Lucy Watts MBE / Lucy Watts Ltd

Young Innovator Award Winner 2020/21

January 12, 2021
Lucy Watts MBE
award, awareness, Blog, Business, care, care package, care planning, Carers, children, chronic illness, collaborative care, communication, complex needs, continuing health, coproduction, COVID, death, deterioration, diagnosis, digital, Digital Leaders 100, digital legacy, disability, disability rights, disabled, doctor, education, empowerment, end of life, family, future, health, healthcare, hospice, hospital, human rights, illness, information sharing, Inspiration, internet, life expectancy, life limiting, life threatening, listen, Lived Experience Learning, News, NHS, nurses, nursing, pain, palliative, palliative care, patient activation, patient experience, patient group, Patient Leader, patient network, peer leader, personal health budget, personalised care, personalised care and support plan, PHB, primary care, Public Involvement, quality of life, rare disease, representative, research, rights, sepsis, social media, social network, social services, spokesperson, surgery, TPN, transition, tube feeding, unpaid carers, user group, video, wheelchair, young carers, young people
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I am excited to announce I am part of the 2020/21 cohort of the Innovate UK Young Innovators Awards. What a real privilege this is to be considered worthy among such amazing innovators. I am part of the cohort due…

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Lucy named 2020 Digital Leader of the Year

October 15, 2020
Lucy Watts MBE
advocate, artificial nutrition, award, chronic illness, collaborative care, communication, complex needs, coproduction, death, deterioration, digital, Digital Leaders 100, digital legacy, disability, disability rights, empowerment, end of life, festival spirit, health, healthcare, hospice, illness, information sharing, life limiting, life threatening, NHS, NHS Assembly, NHS England, NHS Long Term Plan, nurses, nursing, palliative, palliative care, patient activation, patient experience, patient group, Patient Leader, patient network, peer leader, personal health budget, personalised care, Public Involvement, quality of life, representative, social media, social network, social services, spokesperson, TEDx, user group, WHO, WHPCA, World Health Organisation, young people
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Lucy has been named the 2020 Digital Leader of the Year by Digi Leaders. Lucy said: "It's a true honour to have been awarded - and considered worthy of - the 2020 Digital Leader of the Year in the DL100.…

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Making The Digital Leaders 100 List – Will You Vote For Me?

June 20, 2020
Lucy Watts MBE
advocate, award, awareness, Blog, BLOG, care, charity, chronic illness, collaborative care, communication, complex needs, continuing health, coproduction, death, digital, Digital Leaders 100, digital legacy, disability, disability rights, empowerment, end of life, family, healthcare, hospice, illness, information sharing, internet, legacy, life limiting, life threatening, listen, lucy's light, NHS, NHS England, nursing, pain, palliative, palliative care, patient activation, patient experience, patient group, Patient Leader, patient network, peer leader, personal health budget, personalised care, PHB, politics, Public Involvement, rare disease, research, rights, social media, social network, speech, spokesperson, TEDx
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I am delighted to announce I have made the Digital Leaders 100 List in the Digital Leader of the Year category. The Digital Leaders list recognises leaders who are working hard to advance and secure digital transformation and are using…

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These are our realities, and we are the casualties – COVID-19

March 26, 2020
Lucy Watts MBE
advance care plan, Advance Decision, advocate, assistance dog, awareness, BLOG, Blog, care, care package, care planning, Carers, central line, communication, community nurse, complex needs, cope, coping, COVID, death, deterioration, disability, doctor, end of life, family, grief, health, healthcare, hope, hospice, hospital, illness, intestinal failure, Lasting Power of Attorney, life expectancy, life limiting, life threatening, mitochondrial, Molly, mother, neuromuscular disorder, NHS, nurse, nurses, nursing, pain, palliative, palliative care, patient experience, personal health budget, personalised care, primary care, quality of life, rare disease, TPN, unpaid carers
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This blog is part writing therapy, part rant, part activism, part distress, part processing, part making peace. It flicks seamlessly between all of the above, so you never know quite what ‘part’ you’re in when you read it, heck sometimes…

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2019 Review Blog – What A Year!

December 28, 2019
Lucy Watts MBE
advance care plan, advocate, artificial nutrition, assistance dog, awareness, BBC, benefits, BLOG, Blog, budget, care, care package, care planning, Carers, collaborative care, commissioning, communication, complex needs, continuing health, cope, coping, coproduction, death, deterioration, diagnosis, digital, digital legacy, disability, Disability Power 100, disability rights, disabled, DNACPR, doctor, documentary, dog, empowerment, end of life, family, festival, festival spirit, future, grateful, grief, health, healthcare, honorary degree, honorary masters, hope, hospice, Hospice UK, hospital, human rights, illness, information sharing, Inspiration, interview, intestinal failure, Lasting Power of Attorney, laugh, legacy, life expectancy, life limiting, life threatening, lucy's light, MBE, Molly, mother, mum, NHS, NHS Assembly, NHS England, NHS Long Term Plan, nurse, nurses, nursing, Open University, pain, palliative, palliative care, patient activation, patient experience, patient group, Patient Leader, patient network, peer leader, Peer Leadership Academy, personal health budget, personalised care, personalised care and support plan, PHB, podcast, politics, PORT, Power List, pseudo obstruction, Public Involvement, quality of life, rare disease, research, rights, sepsis, sexuality, Shaw Trust, sister, social media, social network, social services, speech, spokesperson, st christopher's, TEDx, TEDxNHS, TPN, transition, unpaid carers, user group, video, vlog, WHPCA, WOMAD, year review, young people
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Well, what a year 2019 has been. Not the best on the health front by any stretch of the imagination, but an incredible year in many other ways. This year is the year I was announced as the 9th most…

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ITV Corrie – Sinead Storyline – Wish They’d Included An Advance Care Planning Conversation?

October 25, 2019
Lucy Watts MBE
advance care plan, Advance Decision, advocate, awareness, BLOG, Blog, care, care planning, communication, Coronation Street, death, deterioration, disability, DNACPR, doctor, Dying Matters, empowerment, end of life, family, future, grief, health, healthcare, hope, hospice, illness, Lasting Power of Attorney, life expectancy, life limiting, life threatening, NHS, NICE, nurse, pain, palliative, palliative care, quality of life
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I have been watching the Coronation Street storyline about Sinead dying from terminal cancer with great focus. Corrie tackling an important topic, not just cervical cancer, but death and dying too. I feel they've done well with the storyline, whilst…

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Becoming a TEDx Speaker – TEDxNHS 2019

October 6, 2019
Lucy Watts MBE
advance care plan, Advance Decision, advocate, artificial nutrition, assistance dog, BLOG, care, care planning, communication, complex needs, death, deterioration, diagnosis, digital legacy, disability, DNACPR, end of life, family, health, healthcare, honorary degree, honorary masters, hope, hospice, hospital, Lasting Power of Attorney, life expectancy, life limiting, life threatening, MBE, Molly, mother, mum, NHS, NHS Assembly, NHS England, nurse, nursing, pain, palliative, palliative care, patient experience, Patient Leader, patient network, personalised care, quality of life, sepsis, speech, TEDx, TEDxNHS, Together for short lives, TPN
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On Friday 4th October, I became a TEDx speaker. I became part of a group of accomplished speakers with an international reach. I ticked an item off my bucket list. I discovered so much about myself. TEDxNHS is an event…

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Lucy’s Light Vlog – Come With Me On A Busy Week In My Life (15th to 20th September 2019)

September 28, 2019
Lucy Watts MBE
advance care plan, Advance Decision, advocate, assistance dog, BLOG, care planning, Carers, commissioning, communication, complex needs, continuing health, cope, coping, coproduction, death, deterioration, disability, disability rights, DNACPR, end of life, family, fear, future, grateful, grief, health, healthcare, hospice, illness, information sharing, Inspiration, Lasting Power of Attorney, legacy, life limiting, life threatening, lucy's light, Molly, mother, mum, NHS, NHS England, NHS Long Term Plan, NICE, nursing, pain, palliative, palliative care, patient activation, patient experience, Patient Leader, peer leader, personal health budget, personalised care, personalised care and support plan, PHB, Public Involvement, quality of life, sepsis, speech, The J's Hospice, transition, unpaid carers, vlog, young people
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Come along with me on a week of my life, covering 15th-20th September, in which I had a very full-on time, various Skype calls/conferences, leading a virtual workshop, 3 separate speeches, and an NHS England meeting, and everything I got…

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Dying Matters Week 2019 – Are We Ready? Our Short Films

May 18, 2019
Lucy Watts MBE
advance care plan, Advance Decision, advocate, artificial nutrition, awareness, awareness week, bereavement, BLOG, care, care planning, Carers, communication, complex needs, continuing health, cope, coping, death, deterioration, diagnosis, digital legacy, disability, DNACPR, Dr Kathryn Mannix, Dying Matters, end of life, family, future, grateful, grief, health, healthcare, hope, hospice, Hospice UK, hospital, illness, life expectancy, life limiting, life threatening, loss, love, mother, mum, nurse, nurses, nursing, pain, palliative, palliative care, patient activation, patient experience, personal health budget, personalised care, quality of life, rare disease, sepsis, TPN, unpaid carers, young people
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This week it has been Dying Matters Week 2019; 13th-19th May. The theme this year was “Are We Ready?” and what a great theme it is, as we really aren’t ready and we need to be. Dying Matters Awareness Week…

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Care of Dying Adults – Blog Adaption Of My Speech

March 24, 2019
Lucy Watts MBE
advance care plan, Advance Decision, advocate, bereavement, BLOG, budget, care, care package, care planning, Carers, charity, chronic illness, collaborative care, commissioning, communication, community nurse, complex needs, continuing health, cope, coping, death, deterioration, disability, disabled, DNACPR, Dr Kathryn Mannix, empowerment, end of life, family, future, GP, grief, health, healthcare, hope, hospice, Hospice UK, hospital, illness, information sharing, Lasting Power of Attorney, life expectancy, life limiting, life threatening, mother, mum, NHS, NICE, nursing, palliative, palliative care, patient activation, patient experience, personalised care, personalised care and support plan, PHB, primary care, quality of life, speech, The J's Hospice, young people
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On Friday 18th January I was invited by Healthcare Conferences UK as part of my role within the Hospice UK People in Partnership Forum to deliver the first speech at their conference titled “Care of Dying Adults in the Last…

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