disability – Page 2 – Lucy Watts MBE / Lucy Watts Ltd

2019 Review Blog – What A Year!

December 28, 2019
Lucy Watts MBE
advance care plan, advocate, artificial nutrition, assistance dog, awareness, BBC, benefits, BLOG, Blog, budget, care, care package, care planning, Carers, collaborative care, commissioning, communication, complex needs, continuing health, cope, coping, coproduction, death, deterioration, diagnosis, digital, digital legacy, disability, Disability Power 100, disability rights, disabled, DNACPR, doctor, documentary, dog, empowerment, end of life, family, festival, festival spirit, future, grateful, grief, health, healthcare, honorary degree, honorary masters, hope, hospice, Hospice UK, hospital, human rights, illness, information sharing, Inspiration, interview, intestinal failure, Lasting Power of Attorney, laugh, legacy, life expectancy, life limiting, life threatening, lucy's light, MBE, Molly, mother, mum, NHS, NHS Assembly, NHS England, NHS Long Term Plan, nurse, nurses, nursing, Open University, pain, palliative, palliative care, patient activation, patient experience, patient group, Patient Leader, patient network, peer leader, Peer Leadership Academy, personal health budget, personalised care, personalised care and support plan, PHB, podcast, politics, PORT, Power List, pseudo obstruction, Public Involvement, quality of life, rare disease, research, rights, sepsis, sexuality, Shaw Trust, sister, social media, social network, social services, speech, spokesperson, st christopher's, TEDx, TEDxNHS, TPN, transition, unpaid carers, user group, video, vlog, WHPCA, WOMAD, year review, young people
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Well, what a year 2019 has been. Not the best on the health front by any stretch of the imagination, but an incredible year in many other ways. This year is the year I was announced as the 9th most…

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ITV Corrie – Sinead Storyline – Wish They’d Included An Advance Care Planning Conversation?

October 25, 2019
Lucy Watts MBE
advance care plan, Advance Decision, advocate, awareness, BLOG, Blog, care, care planning, communication, Coronation Street, death, deterioration, disability, DNACPR, doctor, Dying Matters, empowerment, end of life, family, future, grief, health, healthcare, hope, hospice, illness, Lasting Power of Attorney, life expectancy, life limiting, life threatening, NHS, NICE, nurse, pain, palliative, palliative care, quality of life
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I have been watching the Coronation Street storyline about Sinead dying from terminal cancer with great focus. Corrie tackling an important topic, not just cervical cancer, but death and dying too. I feel they've done well with the storyline, whilst…

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Top 10 Most Influential Disabled Person in Britain

October 9, 2019
Lucy Watts MBE
advocate, assistance dog, award, awareness, BLOG, charity, disability, Disability Power 100, disability rights, disabled, end of life, grateful, health, healthcare, hospice, illness, Inspiration, life limiting, life threatening, MBE, NHS, palliative, palliative care, Patient Leader, peer leader, Power List, representative, rights, Shaw Trust, young people
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On Tuesday 8th October 2019 the 2019 Shaw Trust Disability Power 100 List was announced at a launch event in the House of Lords. Sadly I was unable to attend - I have been poorly this week with a chest…

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Becoming a TEDx Speaker – TEDxNHS 2019

October 6, 2019
Lucy Watts MBE
advance care plan, Advance Decision, advocate, artificial nutrition, assistance dog, BLOG, care, care planning, communication, complex needs, death, deterioration, diagnosis, digital legacy, disability, DNACPR, end of life, family, health, healthcare, honorary degree, honorary masters, hope, hospice, hospital, Lasting Power of Attorney, life expectancy, life limiting, life threatening, MBE, Molly, mother, mum, NHS, NHS Assembly, NHS England, nurse, nursing, pain, palliative, palliative care, patient experience, Patient Leader, patient network, personalised care, quality of life, sepsis, speech, TEDx, TEDxNHS, Together for short lives, TPN
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On Friday 4th October, I became a TEDx speaker. I became part of a group of accomplished speakers with an international reach. I ticked an item off my bucket list. I discovered so much about myself. TEDxNHS is an event…

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Lucy’s Light Vlog – Come With Me On A Busy Week In My Life (15th to 20th September 2019)

September 28, 2019
Lucy Watts MBE
advance care plan, Advance Decision, advocate, assistance dog, BLOG, care planning, Carers, commissioning, communication, complex needs, continuing health, cope, coping, coproduction, death, deterioration, disability, disability rights, DNACPR, end of life, family, fear, future, grateful, grief, health, healthcare, hospice, illness, information sharing, Inspiration, Lasting Power of Attorney, legacy, life limiting, life threatening, lucy's light, Molly, mother, mum, NHS, NHS England, NHS Long Term Plan, NICE, nursing, pain, palliative, palliative care, patient activation, patient experience, Patient Leader, peer leader, personal health budget, personalised care, personalised care and support plan, PHB, Public Involvement, quality of life, sepsis, speech, The J's Hospice, transition, unpaid carers, vlog, young people
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Come along with me on a week of my life, covering 15th-20th September, in which I had a very full-on time, various Skype calls/conferences, leading a virtual workshop, 3 separate speeches, and an NHS England meeting, and everything I got…

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Meeting 2 of the NHS Assembly: Supporting Carers, Workforce and Environmental Impact

July 6, 2019
Lucy Watts MBE
access, advocate, artificial nutrition, assistance dog, BLOG, care, care package, care planning, Carers, children, collaborative care, communication, complex needs, continuing health, coproduction, digital, disability, discrimination, doctor, education, empowerment, future, GP, health, healthcare, hospital, NHS, NHS Assembly, NHS England, NHS Long Term Plan, nurse, nurses, nursing, palliative care, patient experience, Patient Leader, peer leader, personal health budget, personalised care, PHB, politics, primary care, Public Involvement, unpaid carers, young carers, young people
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I’ll start this blog with “Happy 71st Birthday NHS!”. What an institution our NHS is, and what it achieves, I’m living proof of the success of our NHS, despite the challenges it faces. If you want to know what the…

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Co-Production Week: Two Podcasts Sharing Two Different Uses of Co-Production

July 4, 2019
Lucy Watts MBE
advocate, awareness, awareness week, BLOG, budget, care, care package, care planning, Carers, collaborative care, commissioning, communication, complex needs, continuing health, coproduction, disability, empowerment, health, healthcare, interview, life limiting, life threatening, lucy's light, NHS, NHS England, palliative care, patient activation, patient experience, patient group, patient network, peer leader, Peer Leadership Academy, personal health budget, personalised care, personalised care and support plan, PHB, podcast, politics, Public Involvement, research, rights, social media, unpaid carers, user group
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This week it’s National Co-production Week, running 1st-5th July. Managed by the Social Care Institute for Excellence (SCIE, which is pronounced “Sky”), co-production week aims to raise awareness of co-production and to highlight good examples of co-production, especially in social…

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Mid & South Essex Personalised Care & PHB Event – 6th June 2019

June 6, 2019
Lucy Watts MBE
advocate, artificial nutrition, assistance dog, awareness, BLOG, budget, care, care package, care planning, Carers, children, collaborative care, commissioning, communication, community nurse, complex needs, continuing health, coproduction, deterioration, disability, empowerment, family, GP, health, healthcare, hospital, illness, information sharing, life limiting, life threatening, NHS, NHS Assembly, NHS Long Term Plan, nursing, pain, palliative, palliative care, patient activation, patient experience, patient group, Patient Leader, patient network, peer leader, Peer Leadership Academy, personal health budget, personalised care, personalised care and support plan, PHB, primary care, Public Involvement, quality of life, social services, transition, unpaid carers, user group
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Today I co-facilitated an event with the NHS England PHB Eastern Region Lead, Sarah Walker, with the event organised by Sarah, the NHS England Personalised Care Team/Managers and with support from myself. With Essex having one of the lowest uptakes…

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Dying Matters Week 2019 – Are We Ready? Our Short Films

May 18, 2019
Lucy Watts MBE
advance care plan, Advance Decision, advocate, artificial nutrition, awareness, awareness week, bereavement, BLOG, care, care planning, Carers, communication, complex needs, continuing health, cope, coping, death, deterioration, diagnosis, digital legacy, disability, DNACPR, Dr Kathryn Mannix, Dying Matters, end of life, family, future, grateful, grief, health, healthcare, hope, hospice, Hospice UK, hospital, illness, life expectancy, life limiting, life threatening, loss, love, mother, mum, nurse, nurses, nursing, pain, palliative, palliative care, patient activation, patient experience, personal health budget, personalised care, quality of life, rare disease, sepsis, TPN, unpaid carers, young people
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This week it has been Dying Matters Week 2019; 13th-19th May. The theme this year was “Are We Ready?” and what a great theme it is, as we really aren’t ready and we need to be. Dying Matters Awareness Week…

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Sitting on the NHS Assembly & Supporting Implementation of the NHS Long Term Plan

April 25, 2019
Lucy Watts MBE
assistance dog, Blog, BLOG, care, care package, care planning, collaborative care, commissioning, communication, complex needs, coproduction, diagnosis, digital, disability, doctor, empowerment, end of life, future, GP, health, healthcare, hospice, Hospice UK, hospital, ICPCN, illness, information sharing, interview, lancet, life limiting, life threatening, lucy's light, NHS, NHS Assembly, NHS Long Term Plan, NICE, nurse, nurses, nursing, pain, palliative, palliative care, parliament, patient activation, patient experience, patient group, Patient Leader, patient network, personal health budget, personalised care, personalised care and support plan, PHB, politics, primary care, Public Involvement, quality of life, rare disease, representative, rights, sepsis, social services, surgery, transition, unpaid carers, user group, WHO, WHPCA, World Health Organisation, young people
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With everything going on in the country currently, you’d be hard pressed to be able to ignore the negative press around the NHS, its future, the care it’s providing, patient satisfaction, and how other countries (without naming them) are trying…

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