disabled – Page 2 – Lucy Watts MBE / Lucy Watts Ltd

NHS Peer Leadership Academy: Day 6 – The Final Day

November 14, 2018
Lucy Watts MBE
advocate, artificial nutrition, assistance dog, BLOG, Blog, budget, care, Carers, central line, chronic illness, CIPO, collaborative care, complex needs, continuing health, deterioration, diagnosis, disability, disabled, doctor, end of life, health, healthcare, hospice, hospital, ileostomy, illness, Inspiration, intestinal failure, life expectancy, life limiting, life threatening, mitochondrial, Molly, mother, mum, neuromuscular disorder, NHS, nurse, nurses, nursing, pain, palliative, palliative care, patient group, Patient Leader, patient network, Peer Leadership Academy, personal health budget, personalised care, PHB, pseudo obstruction, Public Involvement, quality of life, rare disease, sepsis, social services, stoma, The J's Hospice, TPN, transition, tube feeding, tubes, unpaid carers, user group, wheelchair, WOMAD, young people
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And so it is, the final day of the Autumn 2018 cohort of the NHS Peer Leadership Academy. This continues with my series in which you can read previous blogs sharing my PLA journey by clicking the hyperlinked text for…

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NHS Peer Leadership Academy: Day 5 (final residential)

November 13, 2018
Lucy Watts MBE
advocate, assistance dog, Blog, BLOG, budget, care, Carers, chronic illness, collaborative care, complex needs, continuing health, coproduction, deterioration, disability, disabled, family, future, health, healthcare, illness, life limiting, life threatening, NHS, nurse, nursing, pain, palliative, patient group, Patient Leader, patient network, Peer Leadership Academy, personal health budget, personalised care, PHB, Public Involvement, quality of life, rights, unpaid carers, user group
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Continuing in my series about the NHS Peer Leadership Academy, where you can read the blog about Day 1, the blog about Day 2, the blog about Day 3, the blog about Day 4 by clicking those links, in this…

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Personalised Care & Palliative Care: How Can They Help Each Other?

November 3, 2018
Lucy Watts MBE
BLOG, Blog, budget, care, Carers, chronic illness, collaborative care, complex needs, continuing health, coproduction, deterioration, disability, disabled, end of life, family, future, health, healthcare, hospice, Hospice UK, illness, life limiting, life threatening, NHS, nursing, pain, palliative, palliative care, personal health budget, personalised care, PHB, quality of life, social services, The J's Hospice, unpaid carers, World Health Organisation
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I’ve been writing this blog for a few weeks now but got interrupted by my admission to hospital with sepsis last Sunday. Then yesterday I saw a blog by Tracey Bleakley, CEO of Hospice UK, talking about the very subject…

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2018 Disability Power 100 List: Becoming One Of The Most Influential Disabled People in Britain

October 20, 2018
Lucy Watts MBE
advocate, award, BLOG, Blog, care, charity, chronic illness, complex needs, disability, disabled, grateful, health, healthcare, honorary degree, honorary masters, hospice, illness, Inspiration, internet, intestinal failure, legacy, life limiting, life threatening, lucy's light, neuromuscular disorder, News, NHS, Open University, pain, palliative, Patient Leader, Public Involvement, quality of life, rare disease, rights, social media, social services, stoma, young people
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This week it was announced that I had been named as one of the 100 most influential disabled people in Britain, on the Shaw Trust Disability Power 100 List. What is the Disability Power 100 List? The Shaw Trust Power…

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NHS Peer Leadership Academy: Day 4 (second residential)

October 17, 2018
Lucy Watts MBE
advocate, assistance dog, Blog, BLOG, budget, care, Carers, chronic illness, collaborative care, complex needs, continuing health, coproduction, disability, disabled, doctor, end of life, Events, health, healthcare, hospice, hospital, human rights, illness, Inspiration, life limiting, life threatening, Molly, NHS, nurse, nurses, nursing, pain, palliative, patient group, Patient Leader, patient network, Peer Leadership Academy, personal health budget, PHB, Public Involvement, quality of life, representative, rights, social services, unpaid carers, user group, wheelchair, young people
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So, continuing my series about the NHS Peer Leadership Academy, here’s an update on Day 4 (aka day 2 of the second two-day residential, the first residential being in September, the final residential being in November). I am now home…

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IHUG/ESNEFT User Group Celebration & Workshop; 12/10/18

October 12, 2018
Lucy Watts MBE
advocate, assistance dog, BLOG, Blog, budget, care, Carers, chronic illness, complex needs, continuing health, coproduction, digital legacy, disability, disabled, dog, Dr Tedros, Dreams Come True, Events, family, friend, health, healthcare, honorary degree, honorary masters, hospice, Hospice UK, hospital, House of Lords, human rights, ICPCN, IHUG, ileostomy, illness, Inspiration, intestinal failure, lancet, life limiting, life threatening, listen, lucy's light, MBE, Molly, mother, mum, neuromuscular disorder, NHS, nurse, nurses, nursing, Open University, pain, palliative, parliament, patient group, Patient Leader, patient network, personal health budget, PHB, Public Involvement, quality of life, rare disease, rights, sepsis, septicaemia, sexuality, social media, social services, speech, stoma, The J's Hospice, Together for short lives, TPN, transition, tube feeding, TweetChat, unpaid carers, user group, wheelchair, WHO, WHPCA, World Health Organisation, young carers, young people
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Fantastic day today at the IHUG (Ipswich Hospital User Group) celebration at Ipswich Hospital today where I was giving a presentation and then supporting their workshop afterwards. In my speech I talked about my work and achievements, how I…

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Receiving my Honorary Degree of Master of the University from the Open University – 21/09/18

September 23, 2018
Lucy Watts MBE
advocate, assistance dog, award, Barbican, Blog, BLOG, charity, complex needs, disability, disabled, end of life, health, healthcare, honorary degree, honorary masters, hospice, illness, Inspiration, intestinal failure, life limiting, lucy's light, Molly, mother, mum, neuromuscular disorder, NHS, nurse, Open University, palliative, Patient Leader, sexuality, spokesperson, Together for short lives, transition, young people
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On Friday 21st September 2018 I received a prestigious accolade: I was awarded an Honorary Degree of Master of the University from the Open University, for commitment to public services. What an incredible thing to receive, to be recognised in…

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Our Trip To WOMAD with Festival Spirit & St Christopher’s Hospice

July 30, 2018
Lucy Watts MBE
Blog, BLOG, charity, complex needs, disability, disabled, festival, festival spirit, friend, health, hero, hospice, life limiting, mum, palliative, quality of life, st christopher's, wheelchair, WOMAD, young people
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This weekend, for the first time in a long time, I was simply a young adult. A festival-goer just like everyone else. Thanks to two incredible charities, Festival Spirit and St Christopher’s Hospice, I was able to go to…

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RIP Stephen Hawking; A Hero Of Mine

March 14, 2018
Lucy Watts MBE
advocate, Blog, BLOG, complex needs, death, disability, disabled, end of life, health, hero, hope, illness, legacy, life limiting, palliative, quality of life, Stephen Hawking, wheelchair
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We awoke today to the news that one of our greatest minds, Professor Stephen Hawking, has passed away age 76. Stephen was an incredible person, he had intelligence that knew no bounds, determination and inner strength that would rival any…

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Lucy & Molly – BBC Essex Interview (Dave Monks Show) – 19-01-17

January 20, 2017
Lucy Watts MBE
assistance dog, award, BBC, BLOG, Blog, disability, disabled, dog, ehlers danlos, illness, internet, interview, intestinal failure, life limiting, MBE, Molly, neuromuscular disorder, Order of Merit, PDSA, puppy
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Here's the video from our interview on the Dave Monks Show on BBC Essex.

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