Can you help us raise £130,000 to build #AHomeForLucy, a fully equipped and custom built extension to the property that fully meets my health, clinical/medical, care, practical and access needs, and enables me to remain living in my home? An…
Today it’s International Wheelchair Day and it celebrates the life-enhancing and life-changing benefits of having the right wheelchair, and celebrating the individuals who rely upon this piece of equipment to mobilise and live their lives to the fullest. I’ve…
This week it’s #OpenUpHospiceCare week, run by Hospice UK. A successful campaign that seeks to break down myths surrounding hospice care, raise awareness of the amazing work of hospices and to secure support for hospices and encourage communities to get…
What a year 2018 has been. Such highs, such lows, but overall, it’s been an incredible year. I have had such fun, achieved a lot, received recognition for my work, been involved with even more work and projects, I’ve given…
2017 has been an incredible year, I feel truly privileged for all the opportunities I’ve received, all the new roles and projects, all the experiences, places I’ve been, things I’ve done, people I’ve met. This year Molly and I started…
The #ANurse4TheJs fundraising page is located here: https://mydonate.bt.com/fundraisers/anurse4thejsHere is our campaign video: The J’s Hospice have been supporting me since April 2011, and within the first fortnight my hospice nurse saved my life. Since then they have supported us in a…
This post is to help those (in the UK) who are fundraising to access charitable funding and provide fundraising ideas based on my own experiences and research, though it is geared towards equipment, my ideas may help others. I hope…
Merry Christmas Everyone!Thanks so much for your support throughout this amazing year. I can't quite believe all that has happened, despite the tragedies we have suffered as a family. It started with me writing the foreword to the Difficult Conversations booklet for Together…
I was asked to speak at the Chelsea Chamber Choir's Christmas in Italy concert, the beneficiary being The Wingate Institute, a prestigious, world-renowned research institute dedicated to neurogastroenterology, particularly gut failure. I was asked to speak by my consultant Professor…
WE'VE REACHED THE TARGET! Thanks to your donations and a very big donation from a very generous group of people. Thank you so, so, so much, gratitude isn't strong enough and I cannot say thank you enough - it doesn't…