lucy’s light – Lucy Watts MBE / Lucy Watts Ltd

Lucy’s Light – new blog for a new stage of my life

February 24, 2021
Lucy Watts MBE
advance care plan, Advance Decision, Blog, BLOG, care planning, communication, complex needs, cope, coping, deterioration, disability, DNACPR, end of life, family, fear, future, grateful, grief, grieving process, health, healthcare, hope, hospice, hospital, illness, Inspiration, Lasting Power of Attorney, legacy, life expectancy, life limiting, life threatening, listen, loss, love, lucy's light, NHS, nursing, pain, palliative, palliative care, personalised care, quality of life, young people
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I’ve decided to start a new blog to share my personal journey and experiences at a difficult time in our lives. You can find it at: www.lucyslight.co.uk The reason for this new blog is a recent change in my health.…

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Making The Digital Leaders 100 List – Will You Vote For Me?

June 20, 2020
Lucy Watts MBE
advocate, award, awareness, Blog, BLOG, care, charity, chronic illness, collaborative care, communication, complex needs, continuing health, coproduction, death, digital, Digital Leaders 100, digital legacy, disability, disability rights, empowerment, end of life, family, healthcare, hospice, illness, information sharing, internet, legacy, life limiting, life threatening, listen, lucy's light, NHS, NHS England, nursing, pain, palliative, palliative care, patient activation, patient experience, patient group, Patient Leader, patient network, peer leader, personal health budget, personalised care, PHB, politics, Public Involvement, rare disease, research, rights, social media, social network, speech, spokesperson, TEDx
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I am delighted to announce I have made the Digital Leaders 100 List in the Digital Leader of the Year category. The Digital Leaders list recognises leaders who are working hard to advance and secure digital transformation and are using…

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My TEDxNHS Talk is live! “One Sentence That Transformed My Life”

January 22, 2020
Lucy Watts MBE
advance care plan, Advance Decision, advocate, artificial nutrition, assistance dog, awareness, care, care package, care planning, Carers, collaborative care, communication, complex needs, cope, coping, deterioration, diagnosis, digital legacy, disability, disabled, DNACPR, empowerment, end of life, future, grief, health, healthcare, hope, hospice, hospital, illness, Inspiration, intestinal failure, Lasting Power of Attorney, legacy, life after death, life expectancy, life limiting, life threatening, listen, lucy's light, mitochondrial, Molly, NHS, NHS Assembly, NHS England, NHS Long Term Plan, nurse, nurses, nursing, pain, palliative, palliative care, patient activation, patient experience, personalised care, personalised care and support plan, quality of life, rare disease, sepsis, spokesperson, TEDx, TEDxNHS, TPN, video, World Health Organisation, young people
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2019 Review Blog – What A Year!

December 28, 2019
Lucy Watts MBE
advance care plan, advocate, artificial nutrition, assistance dog, awareness, BBC, benefits, Blog, BLOG, budget, care, care package, care planning, Carers, collaborative care, commissioning, communication, complex needs, continuing health, cope, coping, coproduction, death, deterioration, diagnosis, digital, digital legacy, disability, Disability Power 100, disability rights, disabled, DNACPR, doctor, documentary, dog, empowerment, end of life, family, festival, festival spirit, future, grateful, grief, health, healthcare, honorary degree, honorary masters, hope, hospice, Hospice UK, hospital, human rights, illness, information sharing, Inspiration, interview, intestinal failure, Lasting Power of Attorney, laugh, legacy, life expectancy, life limiting, life threatening, lucy's light, MBE, Molly, mother, mum, NHS, NHS Assembly, NHS England, NHS Long Term Plan, nurse, nurses, nursing, Open University, pain, palliative, palliative care, patient activation, patient experience, patient group, Patient Leader, patient network, peer leader, Peer Leadership Academy, personal health budget, personalised care, personalised care and support plan, PHB, podcast, politics, PORT, Power List, pseudo obstruction, Public Involvement, quality of life, rare disease, research, rights, sepsis, sexuality, Shaw Trust, sister, social media, social network, social services, speech, spokesperson, st christopher's, TEDx, TEDxNHS, TPN, transition, unpaid carers, user group, video, vlog, WHPCA, WOMAD, year review, young people
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Well, what a year 2019 has been. Not the best on the health front by any stretch of the imagination, but an incredible year in many other ways. This year is the year I was announced as the 9th most…

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Lucy’s Light Vlog – Come With Me On A Busy Week In My Life (15th to 20th September 2019)

September 28, 2019
Lucy Watts MBE
advance care plan, Advance Decision, advocate, assistance dog, BLOG, care planning, Carers, commissioning, communication, complex needs, continuing health, cope, coping, coproduction, death, deterioration, disability, disability rights, DNACPR, end of life, family, fear, future, grateful, grief, health, healthcare, hospice, illness, information sharing, Inspiration, Lasting Power of Attorney, legacy, life limiting, life threatening, lucy's light, Molly, mother, mum, NHS, NHS England, NHS Long Term Plan, NICE, nursing, pain, palliative, palliative care, patient activation, patient experience, Patient Leader, peer leader, personal health budget, personalised care, personalised care and support plan, PHB, Public Involvement, quality of life, sepsis, speech, The J's Hospice, transition, unpaid carers, vlog, young people
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Come along with me on a week of my life, covering 15th-20th September, in which I had a very full-on time, various Skype calls/conferences, leading a virtual workshop, 3 separate speeches, and an NHS England meeting, and everything I got…

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Co-Production Week: Two Podcasts Sharing Two Different Uses of Co-Production

July 4, 2019
Lucy Watts MBE
advocate, awareness, awareness week, BLOG, budget, care, care package, care planning, Carers, collaborative care, commissioning, communication, complex needs, continuing health, coproduction, disability, empowerment, health, healthcare, interview, life limiting, life threatening, lucy's light, NHS, NHS England, palliative care, patient activation, patient experience, patient group, patient network, peer leader, Peer Leadership Academy, personal health budget, personalised care, personalised care and support plan, PHB, podcast, politics, Public Involvement, research, rights, social media, unpaid carers, user group
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This week it’s National Co-production Week, running 1st-5th July. Managed by the Social Care Institute for Excellence (SCIE, which is pronounced “Sky”), co-production week aims to raise awareness of co-production and to highlight good examples of co-production, especially in social…

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Sitting on the NHS Assembly & Supporting Implementation of the NHS Long Term Plan

April 25, 2019
Lucy Watts MBE
assistance dog, BLOG, Blog, care, care package, care planning, collaborative care, commissioning, communication, complex needs, coproduction, diagnosis, digital, disability, doctor, empowerment, end of life, future, GP, health, healthcare, hospice, Hospice UK, hospital, ICPCN, illness, information sharing, interview, lancet, life limiting, life threatening, lucy's light, NHS, NHS Assembly, NHS Long Term Plan, NICE, nurse, nurses, nursing, pain, palliative, palliative care, parliament, patient activation, patient experience, patient group, Patient Leader, patient network, personal health budget, personalised care, personalised care and support plan, PHB, politics, primary care, Public Involvement, quality of life, rare disease, representative, rights, sepsis, social services, surgery, transition, unpaid carers, user group, WHO, WHPCA, World Health Organisation, young people
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With everything going on in the country currently, you’d be hard pressed to be able to ignore the negative press around the NHS, its future, the care it’s providing, patient satisfaction, and how other countries (without naming them) are trying…

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2018 – What A Year! & Looking Ahead to 2019

December 30, 2018
Lucy Watts MBE
advocate, assistance dog, award, awareness, Barbican, BBC, biopsy, birthday, BLOG, Blog, budget, care, Carers, central line, charity, chronic illness, collaborative care, complex needs, continuing health, cope, coping, coproduction, death, deterioration, diagnosis, digital legacy, disability, disability rights, disabled, doctor, documentary, dog, dog aid, Dr Tedros, end of life, Executive Board, family, festival, festival spirit, friend, fundraising, future, grateful, health, healthcare, honorary degree, honorary masters, hope, hospice, Hospice UK, hospital, House of Lords, human rights, IHUG, illness, Inspiration, interview, intestinal failure, investiture, legacy, life expectancy, life limiting, life threatening, lucy's light, MBE, mitochondrial, Molly, mother, mum, neuromuscular disorder, NHS, NMCCC, nurse, nurses, nursing, Open University, pain, palliative, palliative care, parliament, patient group, Patient Leader, patient network, Peer Leadership Academy, personal health budget, personalised care, PHB, Public Involvement, quality of life, rare disease, sepsis, septicaemia, sexuality, social network, speech, st christopher's, surgery, The J's Hospice, TPN, transition, TweetChat, unpaid carers, user group, video, WHO, WHPCA, WOMAD, World Health Organisation, year review, young people
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What a year 2018 has been. Such highs, such lows, but overall, it’s been an incredible year. I have had such fun, achieved a lot, received recognition for my work, been involved with even more work and projects, I’ve given…

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My Thoughts On The Future of Hospices

November 6, 2018
Lucy Watts MBE
BLOG, Blog, care, charity, complex needs, continuing health, death, deterioration, disability, end of life, family, future, grief, health, healthcare, hope, hospice, illness, intestinal failure, life limiting, life threatening, loss, lucy's light, nurse, nurses, nursing, pain, palliative, palliative care, patient group, patient network, personal health budget, personalised care, PHB, Public Involvement, quality of life, social services, The J's Hospice, TPN, tube feeding, unpaid carers, young people
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Recently two people got in touch with me and asked me a question about my thoughts on the future of hospices and hospice care. I spent about 2-2.5 hours thinking, brainstorming, and writing everything down in an email response. However,…

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2018 Disability Power 100 List: Becoming One Of The Most Influential Disabled People in Britain

October 20, 2018
Lucy Watts MBE
advocate, award, BLOG, Blog, care, charity, chronic illness, complex needs, disability, disabled, grateful, health, healthcare, honorary degree, honorary masters, hospice, illness, Inspiration, internet, intestinal failure, legacy, life limiting, life threatening, lucy's light, neuromuscular disorder, News, NHS, Open University, pain, palliative, Patient Leader, Public Involvement, quality of life, rare disease, rights, social media, social services, stoma, young people
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This week it was announced that I had been named as one of the 100 most influential disabled people in Britain, on the Shaw Trust Disability Power 100 List. What is the Disability Power 100 List? The Shaw Trust Power…

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