pain – Page 3 – Lucy Watts MBE / Lucy Watts Ltd

2018 Disability Power 100 List: Becoming One Of The Most Influential Disabled People in Britain

October 20, 2018
Lucy Watts MBE
advocate, award, Blog, BLOG, care, charity, chronic illness, complex needs, disability, disabled, grateful, health, healthcare, honorary degree, honorary masters, hospice, illness, Inspiration, internet, intestinal failure, legacy, life limiting, life threatening, lucy's light, neuromuscular disorder, News, NHS, Open University, pain, palliative, Patient Leader, Public Involvement, quality of life, rare disease, rights, social media, social services, stoma, young people
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This week it was announced that I had been named as one of the 100 most influential disabled people in Britain, on the Shaw Trust Disability Power 100 List. What is the Disability Power 100 List? The Shaw Trust Power…

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NHS Peer Leadership Academy: Day 4 (second residential)

October 17, 2018
Lucy Watts MBE
advocate, assistance dog, BLOG, Blog, budget, care, Carers, chronic illness, collaborative care, complex needs, continuing health, coproduction, disability, disabled, doctor, end of life, Events, health, healthcare, hospice, hospital, human rights, illness, Inspiration, life limiting, life threatening, Molly, NHS, nurse, nurses, nursing, pain, palliative, patient group, Patient Leader, patient network, Peer Leadership Academy, personal health budget, PHB, Public Involvement, quality of life, representative, rights, social services, unpaid carers, user group, wheelchair, young people
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So, continuing my series about the NHS Peer Leadership Academy, here’s an update on Day 4 (aka day 2 of the second two-day residential, the first residential being in September, the final residential being in November). I am now home…

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IHUG/ESNEFT User Group Celebration & Workshop; 12/10/18

October 12, 2018
Lucy Watts MBE
advocate, assistance dog, Blog, BLOG, budget, care, Carers, chronic illness, complex needs, continuing health, coproduction, digital legacy, disability, disabled, dog, Dr Tedros, Dreams Come True, Events, family, friend, health, healthcare, honorary degree, honorary masters, hospice, Hospice UK, hospital, House of Lords, human rights, ICPCN, IHUG, ileostomy, illness, Inspiration, intestinal failure, lancet, life limiting, life threatening, listen, lucy's light, MBE, Molly, mother, mum, neuromuscular disorder, NHS, nurse, nurses, nursing, Open University, pain, palliative, parliament, patient group, Patient Leader, patient network, personal health budget, PHB, Public Involvement, quality of life, rare disease, rights, sepsis, septicaemia, sexuality, social media, social services, speech, stoma, The J's Hospice, Together for short lives, TPN, transition, tube feeding, TweetChat, unpaid carers, user group, wheelchair, WHO, WHPCA, World Health Organisation, young carers, young people
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Fantastic day today at the IHUG (Ipswich Hospital User Group) celebration at Ipswich Hospital today where I was giving a presentation and then supporting their workshop afterwards. In my speech I talked about my work and achievements, how I…

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Hospice Care Week & #HatsOn4CPC

October 10, 2018
Lucy Watts MBE
advocate, awareness, awareness week, Blog, BLOG, care, charity, children, death, Dr Tedros, end of life, grateful, health, healthcare, hospice, Hospice UK, ICPCN, illness, legacy, life expectancy, life limiting, life threatening, NCPC, neuromuscular disorder, NHS, pain, palliative, quality of life, The J's Hospice, Together for short lives, WHO, WHPCA, World Health Organisation, young people
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This week it’s Hospice Care Week. All of you know I am a palliative and hospice care advocate having been a beneficiary of such services since I was 17. You all know my story, being born with health problems and…

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Awareness Weeks, Months & Days in September

September 17, 2018
Lucy Watts MBE
artificial nutrition, assistance dog, awareness, awareness week, biopsy, Blog, BLOG, central line, CIPO, diagnosis, disability, dog, health, healthcare, hospital, illness, intestinal failure, life limiting, life threatening, mitochondrial, Molly, neuromuscular disorder, NHS, NMCCC, nurse, nursing, pain, palliative, pseudo obstruction, quality of life, rare disease, sepsis, septicaemia, TPN, WOMAD
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Well back to blogging but on my new website. I thought I’d do a post about a few awareness days/weeks/months that are current this month or fall this week. Sepsis Awareness Month First off, September is Sepsis Awareness Month. I’ve…

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#ExpOfCare Week; A Patient Perspective on Professionals’ Attitude, Behaviour, Approach & Compassion & its Effect on Experience Of Care

April 23, 2018
Lucy Watts MBE
awareness week, BLOG, Blog, collaborative care, complex needs, coproduction, diagnosis, health, healthcare, hospital, illness, life limiting, NHS, nurse, nurses, nursing, pain, palliative, Patient Leader, quality of life, TPN
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#Hellomynameis Lucy Watts MBE. I’m a 24 year old young adult with a progressive, life-limiting condition that has caused very complex medical needs. This means I spend a lot of time in the company of healthcare professionals and far too…

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Hope For A Diagnosis: My NMCCC Admission March 2018 for a Muscle Biopsy

March 10, 2018
Lucy Watts MBE
biopsy, Blog, BLOG, complex needs, diagnosis, disability, health, healthcare, hospital, illness, intestinal failure, life limiting, mitochondrial, mum, neuromuscular disorder, NHS, NMCCC, pain, rare disease, surgery, TPN
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This week I was admitted to the Neuromuscular Complex Care Centre (NMCCC) at the National Hospital for Neurology and Neurosurgery, Queen Square (NHNN). This admission was for my muscle biopsy, long awaited - I’ve been waiting since 2016, and we…

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To Friendship & A Collaborative Partnership; My Meeting with Dr Tedros, Director General of the World Health Organisation

February 23, 2018
Lucy Watts MBE
Blog, BLOG, care, Dr Tedros, end of life, Executive Board, grateful, health, healthcare, hospice, life limiting, life threatening, Molly, mum, NHS, pain, palliative, quality of life, WHO, World Health Organisation
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Today I had the greatest pleasure of a personal meeting with Dr Tedros, Director General of the World Health Organisation (WHO) regarding my palliative care advocacy work and ensuring that palliative care gets included in universal health coverage packages. The…

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Queen’s Nursing Institute Transition of Care Conference – 10th November 2017

November 10, 2017
Lucy Watts MBE
Blog, BLOG, care, chronic illness, complex needs, coproduction, disability, healthcare, hospital, illness, life limiting, NHS, nurse, pain, palliative, Patient Leader, quality of life, speech, transition, young people
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On Friday 10th November 2017 a very special event took place. Hosted by the Queen's Nursing Institute (QNI) with support from the Burdett Trust, the QNI Transition of Care Conference was a great success. It brought together nurses, healthcare professionals…

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World Hospice & Palliative Care Day 2016 – Living & Dying in Pain: It Doesn’t Have To Happen

October 8, 2016
Lucy Watts MBE
artificial nutrition, BLOG, Blog, charity, CIPO, death, end of life, healthcare, hospice, ICPCN, illness, intestinal failure, life limiting, life threatening, pain, palliative, quality of life, The J's Hospice, TPN
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Today is World Hospice and Palliative Care Day, celebrating supportive/palliative and hospice care around the world. This year's theme is Living And Dying In Pain: It Doesn't Have To Happen. Palliative care has been a part of my life since April…

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