patient network – Lucy Watts MBE / Lucy Watts Ltd

Young Innovator Award Winner 2020/21

January 12, 2021
Lucy Watts MBE
award, awareness, Blog, Business, care, care package, care planning, Carers, children, chronic illness, collaborative care, communication, complex needs, continuing health, coproduction, COVID, death, deterioration, diagnosis, digital, Digital Leaders 100, digital legacy, disability, disability rights, disabled, doctor, education, empowerment, end of life, family, future, health, healthcare, hospice, hospital, human rights, illness, information sharing, Inspiration, internet, life expectancy, life limiting, life threatening, listen, Lived Experience Learning, News, NHS, nurses, nursing, pain, palliative, palliative care, patient activation, patient experience, patient group, Patient Leader, patient network, peer leader, personal health budget, personalised care, personalised care and support plan, PHB, primary care, Public Involvement, quality of life, rare disease, representative, research, rights, sepsis, social media, social network, social services, spokesperson, surgery, TPN, transition, tube feeding, unpaid carers, user group, video, wheelchair, young carers, young people
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I am excited to announce I am part of the 2020/21 cohort of the Innovate UK Young Innovators Awards. What a real privilege this is to be considered worthy among such amazing innovators. I am part of the cohort due…

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Lucy named 2020 Digital Leader of the Year

October 15, 2020
Lucy Watts MBE
advocate, artificial nutrition, award, chronic illness, collaborative care, communication, complex needs, coproduction, death, deterioration, digital, Digital Leaders 100, digital legacy, disability, disability rights, empowerment, end of life, festival spirit, health, healthcare, hospice, illness, information sharing, life limiting, life threatening, NHS, NHS Assembly, NHS England, NHS Long Term Plan, nurses, nursing, palliative, palliative care, patient activation, patient experience, patient group, Patient Leader, patient network, peer leader, personal health budget, personalised care, Public Involvement, quality of life, representative, social media, social network, social services, spokesperson, TEDx, user group, WHO, WHPCA, World Health Organisation, young people
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Lucy has been named the 2020 Digital Leader of the Year by Digi Leaders. Lucy said: "It's a true honour to have been awarded - and considered worthy of - the 2020 Digital Leader of the Year in the DL100.…

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Making The Digital Leaders 100 List – Will You Vote For Me?

June 20, 2020
Lucy Watts MBE
advocate, award, awareness, Blog, BLOG, care, charity, chronic illness, collaborative care, communication, complex needs, continuing health, coproduction, death, digital, Digital Leaders 100, digital legacy, disability, disability rights, empowerment, end of life, family, healthcare, hospice, illness, information sharing, internet, legacy, life limiting, life threatening, listen, lucy's light, NHS, NHS England, nursing, pain, palliative, palliative care, patient activation, patient experience, patient group, Patient Leader, patient network, peer leader, personal health budget, personalised care, PHB, politics, Public Involvement, rare disease, research, rights, social media, social network, speech, spokesperson, TEDx
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I am delighted to announce I have made the Digital Leaders 100 List in the Digital Leader of the Year category. The Digital Leaders list recognises leaders who are working hard to advance and secure digital transformation and are using…

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2019 Review Blog – What A Year!

December 28, 2019
Lucy Watts MBE
advance care plan, advocate, artificial nutrition, assistance dog, awareness, BBC, benefits, BLOG, Blog, budget, care, care package, care planning, Carers, collaborative care, commissioning, communication, complex needs, continuing health, cope, coping, coproduction, death, deterioration, diagnosis, digital, digital legacy, disability, Disability Power 100, disability rights, disabled, DNACPR, doctor, documentary, dog, empowerment, end of life, family, festival, festival spirit, future, grateful, grief, health, healthcare, honorary degree, honorary masters, hope, hospice, Hospice UK, hospital, human rights, illness, information sharing, Inspiration, interview, intestinal failure, Lasting Power of Attorney, laugh, legacy, life expectancy, life limiting, life threatening, lucy's light, MBE, Molly, mother, mum, NHS, NHS Assembly, NHS England, NHS Long Term Plan, nurse, nurses, nursing, Open University, pain, palliative, palliative care, patient activation, patient experience, patient group, Patient Leader, patient network, peer leader, Peer Leadership Academy, personal health budget, personalised care, personalised care and support plan, PHB, podcast, politics, PORT, Power List, pseudo obstruction, Public Involvement, quality of life, rare disease, research, rights, sepsis, sexuality, Shaw Trust, sister, social media, social network, social services, speech, spokesperson, st christopher's, TEDx, TEDxNHS, TPN, transition, unpaid carers, user group, video, vlog, WHPCA, WOMAD, year review, young people
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Well, what a year 2019 has been. Not the best on the health front by any stretch of the imagination, but an incredible year in many other ways. This year is the year I was announced as the 9th most…

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Becoming a TEDx Speaker – TEDxNHS 2019

October 6, 2019
Lucy Watts MBE
advance care plan, Advance Decision, advocate, artificial nutrition, assistance dog, BLOG, care, care planning, communication, complex needs, death, deterioration, diagnosis, digital legacy, disability, DNACPR, end of life, family, health, healthcare, honorary degree, honorary masters, hope, hospice, hospital, Lasting Power of Attorney, life expectancy, life limiting, life threatening, MBE, Molly, mother, mum, NHS, NHS Assembly, NHS England, nurse, nursing, pain, palliative, palliative care, patient experience, Patient Leader, patient network, personalised care, quality of life, sepsis, speech, TEDx, TEDxNHS, Together for short lives, TPN
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On Friday 4th October, I became a TEDx speaker. I became part of a group of accomplished speakers with an international reach. I ticked an item off my bucket list. I discovered so much about myself. TEDxNHS is an event…

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Co-Production Week: Two Podcasts Sharing Two Different Uses of Co-Production

July 4, 2019
Lucy Watts MBE
advocate, awareness, awareness week, BLOG, budget, care, care package, care planning, Carers, collaborative care, commissioning, communication, complex needs, continuing health, coproduction, disability, empowerment, health, healthcare, interview, life limiting, life threatening, lucy's light, NHS, NHS England, palliative care, patient activation, patient experience, patient group, patient network, peer leader, Peer Leadership Academy, personal health budget, personalised care, personalised care and support plan, PHB, podcast, politics, Public Involvement, research, rights, social media, unpaid carers, user group
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This week it’s National Co-production Week, running 1st-5th July. Managed by the Social Care Institute for Excellence (SCIE, which is pronounced “Sky”), co-production week aims to raise awareness of co-production and to highlight good examples of co-production, especially in social…

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Mid & South Essex Personalised Care & PHB Event – 6th June 2019

June 6, 2019
Lucy Watts MBE
advocate, artificial nutrition, assistance dog, awareness, BLOG, budget, care, care package, care planning, Carers, children, collaborative care, commissioning, communication, community nurse, complex needs, continuing health, coproduction, deterioration, disability, empowerment, family, GP, health, healthcare, hospital, illness, information sharing, life limiting, life threatening, NHS, NHS Assembly, NHS Long Term Plan, nursing, pain, palliative, palliative care, patient activation, patient experience, patient group, Patient Leader, patient network, peer leader, Peer Leadership Academy, personal health budget, personalised care, personalised care and support plan, PHB, primary care, Public Involvement, quality of life, social services, transition, unpaid carers, user group
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Today I co-facilitated an event with the NHS England PHB Eastern Region Lead, Sarah Walker, with the event organised by Sarah, the NHS England Personalised Care Team/Managers and with support from myself. With Essex having one of the lowest uptakes…

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Sitting on the NHS Assembly & Supporting Implementation of the NHS Long Term Plan

April 25, 2019
Lucy Watts MBE
assistance dog, Blog, BLOG, care, care package, care planning, collaborative care, commissioning, communication, complex needs, coproduction, diagnosis, digital, disability, doctor, empowerment, end of life, future, GP, health, healthcare, hospice, Hospice UK, hospital, ICPCN, illness, information sharing, interview, lancet, life limiting, life threatening, lucy's light, NHS, NHS Assembly, NHS Long Term Plan, NICE, nurse, nurses, nursing, pain, palliative, palliative care, parliament, patient activation, patient experience, patient group, Patient Leader, patient network, personal health budget, personalised care, personalised care and support plan, PHB, politics, primary care, Public Involvement, quality of life, rare disease, representative, rights, sepsis, social services, surgery, transition, unpaid carers, user group, WHO, WHPCA, World Health Organisation, young people
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With everything going on in the country currently, you’d be hard pressed to be able to ignore the negative press around the NHS, its future, the care it’s providing, patient satisfaction, and how other countries (without naming them) are trying…

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2018 – What A Year! & Looking Ahead to 2019

December 30, 2018
Lucy Watts MBE
advocate, assistance dog, award, awareness, Barbican, BBC, biopsy, birthday, Blog, BLOG, budget, care, Carers, central line, charity, chronic illness, collaborative care, complex needs, continuing health, cope, coping, coproduction, death, deterioration, diagnosis, digital legacy, disability, disability rights, disabled, doctor, documentary, dog, dog aid, Dr Tedros, end of life, Executive Board, family, festival, festival spirit, friend, fundraising, future, grateful, health, healthcare, honorary degree, honorary masters, hope, hospice, Hospice UK, hospital, House of Lords, human rights, IHUG, illness, Inspiration, interview, intestinal failure, investiture, legacy, life expectancy, life limiting, life threatening, lucy's light, MBE, mitochondrial, Molly, mother, mum, neuromuscular disorder, NHS, NMCCC, nurse, nurses, nursing, Open University, pain, palliative, palliative care, parliament, patient group, Patient Leader, patient network, Peer Leadership Academy, personal health budget, personalised care, PHB, Public Involvement, quality of life, rare disease, sepsis, septicaemia, sexuality, social network, speech, st christopher's, surgery, The J's Hospice, TPN, transition, TweetChat, unpaid carers, user group, video, WHO, WHPCA, WOMAD, World Health Organisation, year review, young people
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What a year 2018 has been. Such highs, such lows, but overall, it’s been an incredible year. I have had such fun, achieved a lot, received recognition for my work, been involved with even more work and projects, I’ve given…

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International Day of Persons with Disabilities – 3rd December

December 3, 2018
Lucy Watts MBE
advocate, awareness, benefits, Blog, BLOG, care, Carers, charity, children, chronic illness, complex needs, coproduction, disability, Disability Discrimination Act, disability rights, disabled, discrimination, equality act, future, health, healthcare, human rights, illness, legacy, parliament, patient group, Patient Leader, patient network, politics, Public Involvement, quality of life, representative, rights, sexuality, spokesperson, unpaid carers, wheelchair
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Today, 3rd December, is the International Day of Persons with Disabilities. As a woman with a disability living in the UK, I wanted to write a blog to celebrate this day and talk about some issues that are important to…

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