pseudo obstruction – Lucy Watts MBE / Lucy Watts Ltd

2019 Review Blog – What A Year!

December 28, 2019
Lucy Watts MBE
advance care plan, advocate, artificial nutrition, assistance dog, awareness, BBC, benefits, BLOG, Blog, budget, care, care package, care planning, Carers, collaborative care, commissioning, communication, complex needs, continuing health, cope, coping, coproduction, death, deterioration, diagnosis, digital, digital legacy, disability, Disability Power 100, disability rights, disabled, DNACPR, doctor, documentary, dog, empowerment, end of life, family, festival, festival spirit, future, grateful, grief, health, healthcare, honorary degree, honorary masters, hope, hospice, Hospice UK, hospital, human rights, illness, information sharing, Inspiration, interview, intestinal failure, Lasting Power of Attorney, laugh, legacy, life expectancy, life limiting, life threatening, lucy's light, MBE, Molly, mother, mum, NHS, NHS Assembly, NHS England, NHS Long Term Plan, nurse, nurses, nursing, Open University, pain, palliative, palliative care, patient activation, patient experience, patient group, Patient Leader, patient network, peer leader, Peer Leadership Academy, personal health budget, personalised care, personalised care and support plan, PHB, podcast, politics, PORT, Power List, pseudo obstruction, Public Involvement, quality of life, rare disease, research, rights, sepsis, sexuality, Shaw Trust, sister, social media, social network, social services, speech, spokesperson, st christopher's, TEDx, TEDxNHS, TPN, transition, unpaid carers, user group, video, vlog, WHPCA, WOMAD, year review, young people
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Well, what a year 2019 has been. Not the best on the health front by any stretch of the imagination, but an incredible year in many other ways. This year is the year I was announced as the 9th most…

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Rare Disease Day 2019 – What Rare Means For Me

February 28, 2019
Lucy Watts MBE
artificial nutrition, awareness, Blog, BLOG, central line, chronic illness, CIPO, complex needs, deterioration, diagnosis, disability, end of life, health, healthcare, hospice, illness, intestinal failure, life expectancy, life limiting, life threatening, mitochondrial, neuromuscular disorder, NHS, nursing, palliative, palliative care, pseudo obstruction, quality of life, rare disease, rare disease day, sepsis, stoma, TPN, wheelchair, zebra
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Today is Rare Disease Day 2019, celebrating people living with, and raising awareness of rare diseases. There are between 6000 and 8000 rare diseases, with new ones being discovered on a regular basis and equally more and more already known…

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NHS Peer Leadership Academy: Day 6 – The Final Day

November 14, 2018
Lucy Watts MBE
advocate, artificial nutrition, assistance dog, BLOG, Blog, budget, care, Carers, central line, chronic illness, CIPO, collaborative care, complex needs, continuing health, deterioration, diagnosis, disability, disabled, doctor, end of life, health, healthcare, hospice, hospital, ileostomy, illness, Inspiration, intestinal failure, life expectancy, life limiting, life threatening, mitochondrial, Molly, mother, mum, neuromuscular disorder, NHS, nurse, nurses, nursing, pain, palliative, palliative care, patient group, Patient Leader, patient network, Peer Leadership Academy, personal health budget, personalised care, PHB, pseudo obstruction, Public Involvement, quality of life, rare disease, sepsis, social services, stoma, The J's Hospice, TPN, transition, tube feeding, tubes, unpaid carers, user group, wheelchair, WOMAD, young people
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And so it is, the final day of the Autumn 2018 cohort of the NHS Peer Leadership Academy. This continues with my series in which you can read previous blogs sharing my PLA journey by clicking the hyperlinked text for…

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Awareness Weeks, Months & Days in September

September 17, 2018
Lucy Watts MBE
artificial nutrition, assistance dog, awareness, awareness week, biopsy, Blog, BLOG, central line, CIPO, diagnosis, disability, dog, health, healthcare, hospital, illness, intestinal failure, life limiting, life threatening, mitochondrial, Molly, neuromuscular disorder, NHS, NMCCC, nurse, nursing, pain, palliative, pseudo obstruction, quality of life, rare disease, sepsis, septicaemia, TPN, WOMAD
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Well back to blogging but on my new website. I thought I’d do a post about a few awareness days/weeks/months that are current this month or fall this week. Sepsis Awareness Month First off, September is Sepsis Awareness Month. I’ve…

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Sepsis Survivors: How My Family Has Been Touched By Sepsis

September 11, 2017
Lucy Watts MBE
artificial nutrition, awareness, Blog, BLOG, central line, CIPO, disability, family, health, healthcare, intestinal failure, life limiting, life threatening, meningitis, NHS, pseudo obstruction, sepsis, septicaemia, TPN
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(c) UK Sepsis TrustSeptember is Sepsis Awareness Month and Wednesday 13th September is this year's World Sepsis Day. My family has been touched by sepsis a number of times. We know too well how serious sepsis is. There’s an estimated…

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Rare Disease Day 2017 – Do You Care About Rare?

February 28, 2017
Lucy Watts MBE
Blog, BLOG, charity, chronic illness, disability, ehlers danlos, health, illness, intestinal failure, life limiting, NHS, pseudo obstruction, rare disease, rare disease day, TPN, tube feeding, young people, zebra
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According to Rare Disease UK, rare diseases affect 1 in 17 of us at some point in our lifetime, which translates to 7% of the population being affected by a rare disease during their life. This equates to 3.5 million…

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Home Artificial Nutrition Week 2016

August 11, 2016
Lucy Watts MBE
artificial nutrition, Blog, BLOG, bowel, care, central line, chronic illness, CIPO, gastroparesis, health, healthcare, hypermobility, ileostomy, illness, intestinal failure, pseudo obstruction, stoma, TPN, tube feeding
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Most people have heard of feeding tubes, seeing kids with cancer and other illnesses with a NasoGastric Tube taped to their face. People know it’s possible to be fed through a tube in your nose down into your stomach. However,…

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Christmas in Italy Concert in aid of The Wingate Institute – My Speech

December 5, 2015
Lucy Watts MBE
artificial nutrition, Blog, BLOG, bowel, central line, CIPO, CIPs, ehlers danlos, fundraising, health, ileostomy, illness, intestinal failure, pseudo obstruction, quality of life, rare disease, stoma, TPN, tube feeding
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I was asked to speak at the Chelsea Chamber Choir's Christmas in Italy concert, the beneficiary being The Wingate Institute, a prestigious, world-renowned research institute dedicated to neurogastroenterology, particularly gut failure. I was asked to speak by my consultant Professor…

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Junior Doctors – Why I Support Them

November 25, 2015
Lucy Watts MBE
artificial nutrition, BLOG, Blog, care, doctor, ehlers danlos, future, health, healthcare, ileostomy, illness, intestinal failure, life limiting, life threatening, NHS, POTS, pseudo obstruction, stoma, TPN, tubes
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I am a medically complex patient who spends long periods in hospital, whose care is spread across 7 different London hospitals with about 12 consultants involved in my care, and who relies on and is kept alive by our NHS.…

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