quality of life – Lucy Watts MBE / Lucy Watts Ltd

A Home For Lucy – help us raise £130,000 to keep Lucy living at home

May 13, 2021
Lucy Watts MBE
award, awareness, BLOG, Blog, care, complex needs, deterioration, disability, disability rights, family, fundraising, future, health, hospice, illness, life limiting, life threatening, mother, mum, neuromuscular disorder, NHS, nurses, nursing, palliative, palliative care, quality of life, rare disease, rights, wheelchair
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Can you help us raise £130,000 to build #AHomeForLucy, a fully equipped and custom built extension to the property that fully meets my health, clinical/medical, care, practical and access needs, and enables me to remain living in my home? An…

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Lucy’s Light – new blog for a new stage of my life

February 24, 2021
Lucy Watts MBE
advance care plan, Advance Decision, BLOG, Blog, care planning, communication, complex needs, cope, coping, deterioration, disability, DNACPR, end of life, family, fear, future, grateful, grief, grieving process, health, healthcare, hope, hospice, hospital, illness, Inspiration, Lasting Power of Attorney, legacy, life expectancy, life limiting, life threatening, listen, loss, love, lucy's light, NHS, nursing, pain, palliative, palliative care, personalised care, quality of life, young people
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I’ve decided to start a new blog to share my personal journey and experiences at a difficult time in our lives. You can find it at: www.lucyslight.co.uk The reason for this new blog is a recent change in my health.…

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Young Innovator Award Winner 2020/21

January 12, 2021
Lucy Watts MBE
award, awareness, Blog, Business, care, care package, care planning, Carers, children, chronic illness, collaborative care, communication, complex needs, continuing health, coproduction, COVID, death, deterioration, diagnosis, digital, Digital Leaders 100, digital legacy, disability, disability rights, disabled, doctor, education, empowerment, end of life, family, future, health, healthcare, hospice, hospital, human rights, illness, information sharing, Inspiration, internet, life expectancy, life limiting, life threatening, listen, Lived Experience Learning, News, NHS, nurses, nursing, pain, palliative, palliative care, patient activation, patient experience, patient group, Patient Leader, patient network, peer leader, personal health budget, personalised care, personalised care and support plan, PHB, primary care, Public Involvement, quality of life, rare disease, representative, research, rights, sepsis, social media, social network, social services, spokesperson, surgery, TPN, transition, tube feeding, unpaid carers, user group, video, wheelchair, young carers, young people
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I am excited to announce I am part of the 2020/21 cohort of the Innovate UK Young Innovators Awards. What a real privilege this is to be considered worthy among such amazing innovators. I am part of the cohort due…

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Lucy named 2020 Digital Leader of the Year

October 15, 2020
Lucy Watts MBE
advocate, artificial nutrition, award, chronic illness, collaborative care, communication, complex needs, coproduction, death, deterioration, digital, Digital Leaders 100, digital legacy, disability, disability rights, empowerment, end of life, festival spirit, health, healthcare, hospice, illness, information sharing, life limiting, life threatening, NHS, NHS Assembly, NHS England, NHS Long Term Plan, nurses, nursing, palliative, palliative care, patient activation, patient experience, patient group, Patient Leader, patient network, peer leader, personal health budget, personalised care, Public Involvement, quality of life, representative, social media, social network, social services, spokesperson, TEDx, user group, WHO, WHPCA, World Health Organisation, young people
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Lucy has been named the 2020 Digital Leader of the Year by Digi Leaders. Lucy said: "It's a true honour to have been awarded - and considered worthy of - the 2020 Digital Leader of the Year in the DL100.…

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These are our realities, and we are the casualties – COVID-19

March 26, 2020
Lucy Watts MBE
advance care plan, Advance Decision, advocate, assistance dog, awareness, BLOG, Blog, care, care package, care planning, Carers, central line, communication, community nurse, complex needs, cope, coping, COVID, death, deterioration, disability, doctor, end of life, family, grief, health, healthcare, hope, hospice, hospital, illness, intestinal failure, Lasting Power of Attorney, life expectancy, life limiting, life threatening, mitochondrial, Molly, mother, neuromuscular disorder, NHS, nurse, nurses, nursing, pain, palliative, palliative care, patient experience, personal health budget, personalised care, primary care, quality of life, rare disease, TPN, unpaid carers
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This blog is part writing therapy, part rant, part activism, part distress, part processing, part making peace. It flicks seamlessly between all of the above, so you never know quite what ‘part’ you’re in when you read it, heck sometimes…

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International Wheelchair Day – 1st March 2020

March 1, 2020
Lucy Watts MBE
access, advance care plan, artificial nutrition, assistance dog, awareness, Blog, BLOG, Buckingham Palace, care, care package, central line, chronic illness, complex needs, coping, deterioration, diagnosis, disability, Disability Power 100, disability rights, disabled, discrimination, dog, empowerment, equality act, family, festival, fundraising, GCSE, health, healthcare, honorary degree, honorary masters, hospice, hospital, illness, Inspiration, intestinal failure, life limiting, life threatening, MBE, Molly, neuromuscular disorder, NHS, NHS England, nursing, Open University, pain, palliative, palliative care, parliament, patient experience, Patient Leader, peer leader, personal health budget, personalised care, politics, Power List, quality of life, rare disease, rights, social services, speech, TPN, tube feeding, tubes, wheelchair, WOMAD, young people
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Today it’s International Wheelchair Day and it celebrates the life-enhancing and life-changing benefits of having the right wheelchair, and celebrating the individuals who rely upon this piece of equipment to mobilise and live their lives to the fullest. I’ve…

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My TEDxNHS Talk is live! “One Sentence That Transformed My Life”

January 22, 2020
Lucy Watts MBE
advance care plan, Advance Decision, advocate, artificial nutrition, assistance dog, awareness, care, care package, care planning, Carers, collaborative care, communication, complex needs, cope, coping, deterioration, diagnosis, digital legacy, disability, disabled, DNACPR, empowerment, end of life, future, grief, health, healthcare, hope, hospice, hospital, illness, Inspiration, intestinal failure, Lasting Power of Attorney, legacy, life after death, life expectancy, life limiting, life threatening, listen, lucy's light, mitochondrial, Molly, NHS, NHS Assembly, NHS England, NHS Long Term Plan, nurse, nurses, nursing, pain, palliative, palliative care, patient activation, patient experience, personalised care, personalised care and support plan, quality of life, rare disease, sepsis, spokesperson, TEDx, TEDxNHS, TPN, video, World Health Organisation, young people
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2019 Review Blog – What A Year!

December 28, 2019
Lucy Watts MBE
advance care plan, advocate, artificial nutrition, assistance dog, awareness, BBC, benefits, BLOG, Blog, budget, care, care package, care planning, Carers, collaborative care, commissioning, communication, complex needs, continuing health, cope, coping, coproduction, death, deterioration, diagnosis, digital, digital legacy, disability, Disability Power 100, disability rights, disabled, DNACPR, doctor, documentary, dog, empowerment, end of life, family, festival, festival spirit, future, grateful, grief, health, healthcare, honorary degree, honorary masters, hope, hospice, Hospice UK, hospital, human rights, illness, information sharing, Inspiration, interview, intestinal failure, Lasting Power of Attorney, laugh, legacy, life expectancy, life limiting, life threatening, lucy's light, MBE, Molly, mother, mum, NHS, NHS Assembly, NHS England, NHS Long Term Plan, nurse, nurses, nursing, Open University, pain, palliative, palliative care, patient activation, patient experience, patient group, Patient Leader, patient network, peer leader, Peer Leadership Academy, personal health budget, personalised care, personalised care and support plan, PHB, podcast, politics, PORT, Power List, pseudo obstruction, Public Involvement, quality of life, rare disease, research, rights, sepsis, sexuality, Shaw Trust, sister, social media, social network, social services, speech, spokesperson, st christopher's, TEDx, TEDxNHS, TPN, transition, unpaid carers, user group, video, vlog, WHPCA, WOMAD, year review, young people
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Well, what a year 2019 has been. Not the best on the health front by any stretch of the imagination, but an incredible year in many other ways. This year is the year I was announced as the 9th most…

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ITV Corrie – Sinead Storyline – Wish They’d Included An Advance Care Planning Conversation?

October 25, 2019
Lucy Watts MBE
advance care plan, Advance Decision, advocate, awareness, Blog, BLOG, care, care planning, communication, Coronation Street, death, deterioration, disability, DNACPR, doctor, Dying Matters, empowerment, end of life, family, future, grief, health, healthcare, hope, hospice, illness, Lasting Power of Attorney, life expectancy, life limiting, life threatening, NHS, NICE, nurse, pain, palliative, palliative care, quality of life
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I have been watching the Coronation Street storyline about Sinead dying from terminal cancer with great focus. Corrie tackling an important topic, not just cervical cancer, but death and dying too. I feel they've done well with the storyline, whilst…

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Becoming a TEDx Speaker – TEDxNHS 2019

October 6, 2019
Lucy Watts MBE
advance care plan, Advance Decision, advocate, artificial nutrition, assistance dog, BLOG, care, care planning, communication, complex needs, death, deterioration, diagnosis, digital legacy, disability, DNACPR, end of life, family, health, healthcare, honorary degree, honorary masters, hope, hospice, hospital, Lasting Power of Attorney, life expectancy, life limiting, life threatening, MBE, Molly, mother, mum, NHS, NHS Assembly, NHS England, nurse, nursing, pain, palliative, palliative care, patient experience, Patient Leader, patient network, personalised care, quality of life, sepsis, speech, TEDx, TEDxNHS, Together for short lives, TPN
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On Friday 4th October, I became a TEDx speaker. I became part of a group of accomplished speakers with an international reach. I ticked an item off my bucket list. I discovered so much about myself. TEDxNHS is an event…

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