rare disease day – Lucy Watts MBE / Lucy Watts Ltd

Rare Disease Day 2019 – What Rare Means For Me

February 28, 2019
Lucy Watts MBE
artificial nutrition, awareness, BLOG, Blog, central line, chronic illness, CIPO, complex needs, deterioration, diagnosis, disability, end of life, health, healthcare, hospice, illness, intestinal failure, life expectancy, life limiting, life threatening, mitochondrial, neuromuscular disorder, NHS, nursing, palliative, palliative care, pseudo obstruction, quality of life, rare disease, rare disease day, sepsis, stoma, TPN, wheelchair, zebra
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Today is Rare Disease Day 2019, celebrating people living with, and raising awareness of rare diseases. There are between 6000 and 8000 rare diseases, with new ones being discovered on a regular basis and equally more and more already known…

Rare Disease Day 2017 – Do You Care About Rare?

February 28, 2017
Lucy Watts MBE
Blog, BLOG, charity, chronic illness, disability, ehlers danlos, health, illness, intestinal failure, life limiting, NHS, pseudo obstruction, rare disease, rare disease day, TPN, tube feeding, young people, zebra
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According to Rare Disease UK, rare diseases affect 1 in 17 of us at some point in our lifetime, which translates to 7% of the population being affected by a rare disease during their life. This equates to 3.5 million…