2019 Review Blog – What A Year!
Well, what a year 2019 has been. Not the best on the health front by any stretch of the imagination, but an incredible year in many other ways. This year is the year I was announced as the 9th most…
Well, what a year 2019 has been. Not the best on the health front by any stretch of the imagination, but an incredible year in many other ways. This year is the year I was announced as the 9th most…
I’m not sure why society is not better equipped to support unpaid carers. Why they are so often undervalued. They save the UK on average £132 billion a year, the cost of running a second NHS, so why do we…
I recently wrote a piece for the Courageous Parents Network about living with a life-limiting/life threatening illness, palliative care, end of life planning and quality of life. It's a brief summary of my journey since becoming ill, the support I've had,…
Merry Christmas to my wonderful followers and friends You not only support and care for me, but you have helped to bring my message and my experiences to a greater and greater audience. We're up to 67,000 views already, in under…
Bev (left), Mum Kate and I22nd November 2014 - I attended The J's Hospice Charity Ball in the role of guest speaker and had a wonderful night. I spoke about my care from The J's and how they have helped…
Sunday 14th September 2014 - It’s my 21st birthday on the 2nd October, and I am truly grateful I am here to reach this milestone. Every birthday is a milestone for us, but turning 21 is a huge one. For someone…
Saturday 30th August 2014To my beautiful mum, Thank you so much for all you do. You keep me alive each day physically and mentally, giving up your life to save mine. You gave me life in the beginning, and continue to…
Here is my video explaining my life with my conditions.I hope you all like it, let me know if you want me to do more videos in the future x
Victoria Jane, do you know how much I love you? We say it in passing; it's a bit of a formality really. But do you feel it? You know, do you feel loved and cherished and all warm inside in…
However unlucky I feel, however bad things get, in between each crisis, I still consider myself very lucky. It is true a that there is always someone worse off than you, but I'm not a fan that saying because I…