The J’s Hospice – Lucy Watts MBE / Lucy Watts Ltd

Lucy’s Light Vlog – Come With Me On A Busy Week In My Life (15th to 20th September 2019)

September 28, 2019
Lucy Watts MBE
advance care plan, Advance Decision, advocate, assistance dog, BLOG, care planning, Carers, commissioning, communication, complex needs, continuing health, cope, coping, coproduction, death, deterioration, disability, disability rights, DNACPR, end of life, family, fear, future, grateful, grief, health, healthcare, hospice, illness, information sharing, Inspiration, Lasting Power of Attorney, legacy, life limiting, life threatening, lucy's light, Molly, mother, mum, NHS, NHS England, NHS Long Term Plan, NICE, nursing, pain, palliative, palliative care, patient activation, patient experience, Patient Leader, peer leader, personal health budget, personalised care, personalised care and support plan, PHB, Public Involvement, quality of life, sepsis, speech, The J's Hospice, transition, unpaid carers, vlog, young people
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Come along with me on a week of my life, covering 15th-20th September, in which I had a very full-on time, various Skype calls/conferences, leading a virtual workshop, 3 separate speeches, and an NHS England meeting, and everything I got…

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Care of Dying Adults – Blog Adaption Of My Speech

March 24, 2019
Lucy Watts MBE
advance care plan, Advance Decision, advocate, bereavement, BLOG, budget, care, care package, care planning, Carers, charity, chronic illness, collaborative care, commissioning, communication, community nurse, complex needs, continuing health, cope, coping, death, deterioration, disability, disabled, DNACPR, Dr Kathryn Mannix, empowerment, end of life, family, future, GP, grief, health, healthcare, hope, hospice, Hospice UK, hospital, illness, information sharing, Lasting Power of Attorney, life expectancy, life limiting, life threatening, mother, mum, NHS, NICE, nursing, palliative, palliative care, patient activation, patient experience, personalised care, personalised care and support plan, PHB, primary care, quality of life, speech, The J's Hospice, young people
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On Friday 18th January I was invited by Healthcare Conferences UK as part of my role within the Hospice UK People in Partnership Forum to deliver the first speech at their conference titled “Care of Dying Adults in the Last…

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#OpenUpHospiceCare 2019

March 7, 2019
Lucy Watts MBE
advocate, artificial nutrition, awareness, awareness week, BLOG, Blog, care, charity, chronic illness, complex needs, coping, death, deterioration, disability, end of life, family, fundraising, health, healthcare, hospice, Hospice UK, hospital, illness, intestinal failure, life expectancy, life limiting, life threatening, loss, love, mother, mum, NHS, nurse, nurses, nursing, pain, palliative, palliative care, personalised care, quality of life, The J's Hospice, TPN, young people
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This week it’s #OpenUpHospiceCare week, run by Hospice UK. A successful campaign that seeks to break down myths surrounding hospice care, raise awareness of the amazing work of hospices and to secure support for hospices and encourage communities to get…

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Communication in Healthcare: My Experiences & Thoughts

February 10, 2019
Lucy Watts MBE
advocate, BLOG, Blog, care, communication, complex needs, death, deterioration, doctor, end of life, family, future, health, healthcare, hospice, hospital, illness, life expectancy, life limiting, life threatening, listen, mother, mum, NHS, nurse, nurses, nursing, palliative, palliative care, personalised care, speech, The J's Hospice
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This blog is an adaptation of a speech I recently gave at King George Hospital, Ilford, at the Barking, Havering and Redbridge University Hospitals NHS Trust day on palliative and end of life care. It was well received and I…

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2018 – What A Year! & Looking Ahead to 2019

December 30, 2018
Lucy Watts MBE
advocate, assistance dog, award, awareness, Barbican, BBC, biopsy, birthday, Blog, BLOG, budget, care, Carers, central line, charity, chronic illness, collaborative care, complex needs, continuing health, cope, coping, coproduction, death, deterioration, diagnosis, digital legacy, disability, disability rights, disabled, doctor, documentary, dog, dog aid, Dr Tedros, end of life, Executive Board, family, festival, festival spirit, friend, fundraising, future, grateful, health, healthcare, honorary degree, honorary masters, hope, hospice, Hospice UK, hospital, House of Lords, human rights, IHUG, illness, Inspiration, interview, intestinal failure, investiture, legacy, life expectancy, life limiting, life threatening, lucy's light, MBE, mitochondrial, Molly, mother, mum, neuromuscular disorder, NHS, NMCCC, nurse, nurses, nursing, Open University, pain, palliative, palliative care, parliament, patient group, Patient Leader, patient network, Peer Leadership Academy, personal health budget, personalised care, PHB, Public Involvement, quality of life, rare disease, sepsis, septicaemia, sexuality, social network, speech, st christopher's, surgery, The J's Hospice, TPN, transition, TweetChat, unpaid carers, user group, video, WHO, WHPCA, WOMAD, World Health Organisation, year review, young people
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What a year 2018 has been. Such highs, such lows, but overall, it’s been an incredible year. I have had such fun, achieved a lot, received recognition for my work, been involved with even more work and projects, I’ve given…

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NHS Peer Leadership Academy: Day 6 – The Final Day

November 14, 2018
Lucy Watts MBE
advocate, artificial nutrition, assistance dog, BLOG, Blog, budget, care, Carers, central line, chronic illness, CIPO, collaborative care, complex needs, continuing health, deterioration, diagnosis, disability, disabled, doctor, end of life, health, healthcare, hospice, hospital, ileostomy, illness, Inspiration, intestinal failure, life expectancy, life limiting, life threatening, mitochondrial, Molly, mother, mum, neuromuscular disorder, NHS, nurse, nurses, nursing, pain, palliative, palliative care, patient group, Patient Leader, patient network, Peer Leadership Academy, personal health budget, personalised care, PHB, pseudo obstruction, Public Involvement, quality of life, rare disease, sepsis, social services, stoma, The J's Hospice, TPN, transition, tube feeding, tubes, unpaid carers, user group, wheelchair, WOMAD, young people
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And so it is, the final day of the Autumn 2018 cohort of the NHS Peer Leadership Academy. This continues with my series in which you can read previous blogs sharing my PLA journey by clicking the hyperlinked text for…

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My Thoughts On The Future of Hospices

November 6, 2018
Lucy Watts MBE
Blog, BLOG, care, charity, complex needs, continuing health, death, deterioration, disability, end of life, family, future, grief, health, healthcare, hope, hospice, illness, intestinal failure, life limiting, life threatening, loss, lucy's light, nurse, nurses, nursing, pain, palliative, palliative care, patient group, patient network, personal health budget, personalised care, PHB, Public Involvement, quality of life, social services, The J's Hospice, TPN, tube feeding, unpaid carers, young people
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Recently two people got in touch with me and asked me a question about my thoughts on the future of hospices and hospice care. I spent about 2-2.5 hours thinking, brainstorming, and writing everything down in an email response. However,…

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Personalised Care & Palliative Care: How Can They Help Each Other?

November 3, 2018
Lucy Watts MBE
BLOG, Blog, budget, care, Carers, chronic illness, collaborative care, complex needs, continuing health, coproduction, deterioration, disability, disabled, end of life, family, future, health, healthcare, hospice, Hospice UK, illness, life limiting, life threatening, NHS, nursing, pain, palliative, palliative care, personal health budget, personalised care, PHB, quality of life, social services, The J's Hospice, unpaid carers, World Health Organisation
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I’ve been writing this blog for a few weeks now but got interrupted by my admission to hospital with sepsis last Sunday. Then yesterday I saw a blog by Tracey Bleakley, CEO of Hospice UK, talking about the very subject…

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IHUG/ESNEFT User Group Celebration & Workshop; 12/10/18

October 12, 2018
Lucy Watts MBE
advocate, assistance dog, BLOG, Blog, budget, care, Carers, chronic illness, complex needs, continuing health, coproduction, digital legacy, disability, disabled, dog, Dr Tedros, Dreams Come True, Events, family, friend, health, healthcare, honorary degree, honorary masters, hospice, Hospice UK, hospital, House of Lords, human rights, ICPCN, IHUG, ileostomy, illness, Inspiration, intestinal failure, lancet, life limiting, life threatening, listen, lucy's light, MBE, Molly, mother, mum, neuromuscular disorder, NHS, nurse, nurses, nursing, Open University, pain, palliative, parliament, patient group, Patient Leader, patient network, personal health budget, PHB, Public Involvement, quality of life, rare disease, rights, sepsis, septicaemia, sexuality, social media, social services, speech, stoma, The J's Hospice, Together for short lives, TPN, transition, tube feeding, TweetChat, unpaid carers, user group, wheelchair, WHO, WHPCA, World Health Organisation, young carers, young people
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Fantastic day today at the IHUG (Ipswich Hospital User Group) celebration at Ipswich Hospital today where I was giving a presentation and then supporting their workshop afterwards. In my speech I talked about my work and achievements, how I…

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Hospice Care Week & #HatsOn4CPC

October 10, 2018
Lucy Watts MBE
advocate, awareness, awareness week, BLOG, Blog, care, charity, children, death, Dr Tedros, end of life, grateful, health, healthcare, hospice, Hospice UK, ICPCN, illness, legacy, life expectancy, life limiting, life threatening, NCPC, neuromuscular disorder, NHS, pain, palliative, quality of life, The J's Hospice, Together for short lives, WHO, WHPCA, World Health Organisation, young people
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This week it’s Hospice Care Week. All of you know I am a palliative and hospice care advocate having been a beneficiary of such services since I was 17. You all know my story, being born with health problems and…

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