TPN – Page 2 – Lucy Watts MBE / Lucy Watts Ltd

Caldicott Principles & Information Sharing At End Of Life – Blog Adaptation Of My Speech

December 13, 2018
Lucy Watts MBE
advocate, artificial nutrition, Blog, BLOG, budget, Caldicott, care, Carers, chronic illness, collaborative care, complex needs, continuing health, death, deterioration, diagnosis, digital, disability, end of life, family, health, healthcare, hospice, hospital, illness, information sharing, life limiting, life threatening, mother, NHS, nurse, nurses, nursing, palliative, palliative care, personal health budget, personalised care, PHB, quality of life, speech, TPN, unpaid carers, young people
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Introduction: This blog is an adaptation of a speech I gave at a Healthcare Conferences UK (HC UK) conference on information sharing for patients and families, and across services at end of life, delivered at the “Caldicott End Of Life…

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NHS Peer Leadership Academy: Day 6 – The Final Day

November 14, 2018
Lucy Watts MBE
advocate, artificial nutrition, assistance dog, BLOG, Blog, budget, care, Carers, central line, chronic illness, CIPO, collaborative care, complex needs, continuing health, deterioration, diagnosis, disability, disabled, doctor, end of life, health, healthcare, hospice, hospital, ileostomy, illness, Inspiration, intestinal failure, life expectancy, life limiting, life threatening, mitochondrial, Molly, mother, mum, neuromuscular disorder, NHS, nurse, nurses, nursing, pain, palliative, palliative care, patient group, Patient Leader, patient network, Peer Leadership Academy, personal health budget, personalised care, PHB, pseudo obstruction, Public Involvement, quality of life, rare disease, sepsis, social services, stoma, The J's Hospice, TPN, transition, tube feeding, tubes, unpaid carers, user group, wheelchair, WOMAD, young people
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And so it is, the final day of the Autumn 2018 cohort of the NHS Peer Leadership Academy. This continues with my series in which you can read previous blogs sharing my PLA journey by clicking the hyperlinked text for…

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My Thoughts On The Future of Hospices

November 6, 2018
Lucy Watts MBE
Blog, BLOG, care, charity, complex needs, continuing health, death, deterioration, disability, end of life, family, future, grief, health, healthcare, hope, hospice, illness, intestinal failure, life limiting, life threatening, loss, lucy's light, nurse, nurses, nursing, pain, palliative, palliative care, patient group, patient network, personal health budget, personalised care, PHB, Public Involvement, quality of life, social services, The J's Hospice, TPN, tube feeding, unpaid carers, young people
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Recently two people got in touch with me and asked me a question about my thoughts on the future of hospices and hospice care. I spent about 2-2.5 hours thinking, brainstorming, and writing everything down in an email response. However,…

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IHUG/ESNEFT User Group Celebration & Workshop; 12/10/18

October 12, 2018
Lucy Watts MBE
advocate, assistance dog, BLOG, Blog, budget, care, Carers, chronic illness, complex needs, continuing health, coproduction, digital legacy, disability, disabled, dog, Dr Tedros, Dreams Come True, Events, family, friend, health, healthcare, honorary degree, honorary masters, hospice, Hospice UK, hospital, House of Lords, human rights, ICPCN, IHUG, ileostomy, illness, Inspiration, intestinal failure, lancet, life limiting, life threatening, listen, lucy's light, MBE, Molly, mother, mum, neuromuscular disorder, NHS, nurse, nurses, nursing, Open University, pain, palliative, parliament, patient group, Patient Leader, patient network, personal health budget, PHB, Public Involvement, quality of life, rare disease, rights, sepsis, septicaemia, sexuality, social media, social services, speech, stoma, The J's Hospice, Together for short lives, TPN, transition, tube feeding, TweetChat, unpaid carers, user group, wheelchair, WHO, WHPCA, World Health Organisation, young carers, young people
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Fantastic day today at the IHUG (Ipswich Hospital User Group) celebration at Ipswich Hospital today where I was giving a presentation and then supporting their workshop afterwards. In my speech I talked about my work and achievements, how I…

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NHS Peer Leadership Academy: Day 1 of the First Residential

September 18, 2018
Lucy Watts MBE
artificial nutrition, assistance dog, BLOG, Blog, budget, care, Carers, chronic illness, collaborative care, complex needs, continuing health, coproduction, disability, end of life, health, healthcare, hospice, hospital, illness, life limiting, NHS, nursing, palliative, Patient Leader, Peer Leadership Academy, personal health budget, PHB, Public Involvement, quality of life, social services, TPN, transition, tube feeding, unpaid carers
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NHS Peer Leadership Academy Day 1 Well, what a day today has been. I write this late as we’ve been on the go all day. I am shattered. But it has been absolutely amazing. Meeting so many incredible people on…

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Awareness Weeks, Months & Days in September

September 17, 2018
Lucy Watts MBE
artificial nutrition, assistance dog, awareness, awareness week, biopsy, Blog, BLOG, central line, CIPO, diagnosis, disability, dog, health, healthcare, hospital, illness, intestinal failure, life limiting, life threatening, mitochondrial, Molly, neuromuscular disorder, NHS, NMCCC, nurse, nursing, pain, palliative, pseudo obstruction, quality of life, rare disease, sepsis, septicaemia, TPN, WOMAD
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Well back to blogging but on my new website. I thought I’d do a post about a few awareness days/weeks/months that are current this month or fall this week. Sepsis Awareness Month First off, September is Sepsis Awareness Month. I’ve…

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Happy 70th Birthday, NHS – Thank You For Keeping Me Alive

July 5, 2018
Lucy Watts MBE
assistance dog, birthday, Blog, BLOG, disability, friend, health, healthcare, illness, intestinal failure, life limiting, life threatening, Molly, NHS, nurse, palliative, quality of life, sepsis, TPN
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Happy 70 Birthday, NHS.Today we celebrate the NHS and all its successes and glory. An institution not only providing free healthcare for all, regardless of need or ability to pay, but one that is a national treasure. The NHS may…

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#ExpOfCare Week; A Patient Perspective on Professionals’ Attitude, Behaviour, Approach & Compassion & its Effect on Experience Of Care

April 23, 2018
Lucy Watts MBE
awareness week, BLOG, Blog, collaborative care, complex needs, coproduction, diagnosis, health, healthcare, hospital, illness, life limiting, NHS, nurse, nurses, nursing, pain, palliative, Patient Leader, quality of life, TPN
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#Hellomynameis Lucy Watts MBE. I’m a 24 year old young adult with a progressive, life-limiting condition that has caused very complex medical needs. This means I spend a lot of time in the company of healthcare professionals and far too…

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Hope For A Diagnosis: My NMCCC Admission March 2018 for a Muscle Biopsy

March 10, 2018
Lucy Watts MBE
biopsy, Blog, BLOG, complex needs, diagnosis, disability, health, healthcare, hospital, illness, intestinal failure, life limiting, mitochondrial, mum, neuromuscular disorder, NHS, NMCCC, pain, rare disease, surgery, TPN
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This week I was admitted to the Neuromuscular Complex Care Centre (NMCCC) at the National Hospital for Neurology and Neurosurgery, Queen Square (NHNN). This admission was for my muscle biopsy, long awaited - I’ve been waiting since 2016, and we…

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Another Year Over, A New One (almost) Begun – Reflecting on 2017

December 30, 2017
Lucy Watts MBE
2017, assistance dog week, award, BBC, BLOG, Blog, central line, family, fundraising, grateful, human rights, life limiting, NHS, NMCCC, palliative, Patient Leader, PORT, quality of life, Together for short lives, TPN
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2017 has been an incredible year, I feel truly privileged for all the opportunities I’ve received, all the new roles and projects, all the experiences, places I’ve been, things I’ve done, people I’ve met. This year Molly and I started…

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