unpaid carers – Page 2 – Lucy Watts MBE / Lucy Watts Ltd

2018 – What A Year! & Looking Ahead to 2019

December 30, 2018
Lucy Watts MBE
advocate, assistance dog, award, awareness, Barbican, BBC, biopsy, birthday, Blog, BLOG, budget, care, Carers, central line, charity, chronic illness, collaborative care, complex needs, continuing health, cope, coping, coproduction, death, deterioration, diagnosis, digital legacy, disability, disability rights, disabled, doctor, documentary, dog, dog aid, Dr Tedros, end of life, Executive Board, family, festival, festival spirit, friend, fundraising, future, grateful, health, healthcare, honorary degree, honorary masters, hope, hospice, Hospice UK, hospital, House of Lords, human rights, IHUG, illness, Inspiration, interview, intestinal failure, investiture, legacy, life expectancy, life limiting, life threatening, lucy's light, MBE, mitochondrial, Molly, mother, mum, neuromuscular disorder, NHS, NMCCC, nurse, nurses, nursing, Open University, pain, palliative, palliative care, parliament, patient group, Patient Leader, patient network, Peer Leadership Academy, personal health budget, personalised care, PHB, Public Involvement, quality of life, rare disease, sepsis, septicaemia, sexuality, social network, speech, st christopher's, surgery, The J's Hospice, TPN, transition, TweetChat, unpaid carers, user group, video, WHO, WHPCA, WOMAD, World Health Organisation, year review, young people
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What a year 2018 has been. Such highs, such lows, but overall, it’s been an incredible year. I have had such fun, achieved a lot, received recognition for my work, been involved with even more work and projects, I’ve given…

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Caldicott Principles & Information Sharing At End Of Life – Blog Adaptation Of My Speech

December 13, 2018
Lucy Watts MBE
advocate, artificial nutrition, BLOG, Blog, budget, Caldicott, care, Carers, chronic illness, collaborative care, complex needs, continuing health, death, deterioration, diagnosis, digital, disability, end of life, family, health, healthcare, hospice, hospital, illness, information sharing, life limiting, life threatening, mother, NHS, nurse, nurses, nursing, palliative, palliative care, personal health budget, personalised care, PHB, quality of life, speech, TPN, unpaid carers, young people
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Introduction: This blog is an adaptation of a speech I gave at a Healthcare Conferences UK (HC UK) conference on information sharing for patients and families, and across services at end of life, delivered at the “Caldicott End Of Life…

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International Day of Persons with Disabilities – 3rd December

December 3, 2018
Lucy Watts MBE
advocate, awareness, benefits, Blog, BLOG, care, Carers, charity, children, chronic illness, complex needs, coproduction, disability, Disability Discrimination Act, disability rights, disabled, discrimination, equality act, future, health, healthcare, human rights, illness, legacy, parliament, patient group, Patient Leader, patient network, politics, Public Involvement, quality of life, representative, rights, sexuality, spokesperson, unpaid carers, wheelchair
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Today, 3rd December, is the International Day of Persons with Disabilities. As a woman with a disability living in the UK, I wanted to write a blog to celebrate this day and talk about some issues that are important to…

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NHS Peer Leadership Academy: Day 6 – The Final Day

November 14, 2018
Lucy Watts MBE
advocate, artificial nutrition, assistance dog, Blog, BLOG, budget, care, Carers, central line, chronic illness, CIPO, collaborative care, complex needs, continuing health, deterioration, diagnosis, disability, disabled, doctor, end of life, health, healthcare, hospice, hospital, ileostomy, illness, Inspiration, intestinal failure, life expectancy, life limiting, life threatening, mitochondrial, Molly, mother, mum, neuromuscular disorder, NHS, nurse, nurses, nursing, pain, palliative, palliative care, patient group, Patient Leader, patient network, Peer Leadership Academy, personal health budget, personalised care, PHB, pseudo obstruction, Public Involvement, quality of life, rare disease, sepsis, social services, stoma, The J's Hospice, TPN, transition, tube feeding, tubes, unpaid carers, user group, wheelchair, WOMAD, young people
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And so it is, the final day of the Autumn 2018 cohort of the NHS Peer Leadership Academy. This continues with my series in which you can read previous blogs sharing my PLA journey by clicking the hyperlinked text for…

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NHS Peer Leadership Academy: Day 5 (final residential)

November 13, 2018
Lucy Watts MBE
advocate, assistance dog, Blog, BLOG, budget, care, Carers, chronic illness, collaborative care, complex needs, continuing health, coproduction, deterioration, disability, disabled, family, future, health, healthcare, illness, life limiting, life threatening, NHS, nurse, nursing, pain, palliative, patient group, Patient Leader, patient network, Peer Leadership Academy, personal health budget, personalised care, PHB, Public Involvement, quality of life, rights, unpaid carers, user group
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Continuing in my series about the NHS Peer Leadership Academy, where you can read the blog about Day 1, the blog about Day 2, the blog about Day 3, the blog about Day 4 by clicking those links, in this…

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My Thoughts On The Future of Hospices

November 6, 2018
Lucy Watts MBE
BLOG, Blog, care, charity, complex needs, continuing health, death, deterioration, disability, end of life, family, future, grief, health, healthcare, hope, hospice, illness, intestinal failure, life limiting, life threatening, loss, lucy's light, nurse, nurses, nursing, pain, palliative, palliative care, patient group, patient network, personal health budget, personalised care, PHB, Public Involvement, quality of life, social services, The J's Hospice, TPN, tube feeding, unpaid carers, young people
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Recently two people got in touch with me and asked me a question about my thoughts on the future of hospices and hospice care. I spent about 2-2.5 hours thinking, brainstorming, and writing everything down in an email response. However,…

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Personalised Care & Palliative Care: How Can They Help Each Other?

November 3, 2018
Lucy Watts MBE
Blog, BLOG, budget, care, Carers, chronic illness, collaborative care, complex needs, continuing health, coproduction, deterioration, disability, disabled, end of life, family, future, health, healthcare, hospice, Hospice UK, illness, life limiting, life threatening, NHS, nursing, pain, palliative, palliative care, personal health budget, personalised care, PHB, quality of life, social services, The J's Hospice, unpaid carers, World Health Organisation
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I’ve been writing this blog for a few weeks now but got interrupted by my admission to hospital with sepsis last Sunday. Then yesterday I saw a blog by Tracey Bleakley, CEO of Hospice UK, talking about the very subject…

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NHS Peer Leadership Academy: Day 4 (second residential)

October 17, 2018
Lucy Watts MBE
advocate, assistance dog, BLOG, Blog, budget, care, Carers, chronic illness, collaborative care, complex needs, continuing health, coproduction, disability, disabled, doctor, end of life, Events, health, healthcare, hospice, hospital, human rights, illness, Inspiration, life limiting, life threatening, Molly, NHS, nurse, nurses, nursing, pain, palliative, patient group, Patient Leader, patient network, Peer Leadership Academy, personal health budget, PHB, Public Involvement, quality of life, representative, rights, social services, unpaid carers, user group, wheelchair, young people
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So, continuing my series about the NHS Peer Leadership Academy, here’s an update on Day 4 (aka day 2 of the second two-day residential, the first residential being in September, the final residential being in November). I am now home…

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NHS Peer Leadership Academy: Day 3 (second residential)

October 16, 2018
Lucy Watts MBE
advocate, assistance dog, BLOG, Blog, budget, care, Carers, chronic illness, collaborative care, complex needs, continuing health, coproduction, deterioration, diagnosis, disability, dog, health, healthcare, illness, life limiting, life threatening, Molly, NHS, nurse, nurses, nursing, palliative, patient group, Patient Leader, patient network, Peer Leadership Academy, personal health budget, PHB, Public Involvement, quality of life, rights, unpaid carers, young people
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Continuing on with my blog series about the NHS Peer Leadership Academy, here is day three of the Academy. Days one and two took place on 18th and 19th September, and today is day three, tomorrow day four and then…

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IHUG/ESNEFT User Group Celebration & Workshop; 12/10/18

October 12, 2018
Lucy Watts MBE
advocate, assistance dog, BLOG, Blog, budget, care, Carers, chronic illness, complex needs, continuing health, coproduction, digital legacy, disability, disabled, dog, Dr Tedros, Dreams Come True, Events, family, friend, health, healthcare, honorary degree, honorary masters, hospice, Hospice UK, hospital, House of Lords, human rights, ICPCN, IHUG, ileostomy, illness, Inspiration, intestinal failure, lancet, life limiting, life threatening, listen, lucy's light, MBE, Molly, mother, mum, neuromuscular disorder, NHS, nurse, nurses, nursing, Open University, pain, palliative, parliament, patient group, Patient Leader, patient network, personal health budget, PHB, Public Involvement, quality of life, rare disease, rights, sepsis, septicaemia, sexuality, social media, social services, speech, stoma, The J's Hospice, Together for short lives, TPN, transition, tube feeding, TweetChat, unpaid carers, user group, wheelchair, WHO, WHPCA, World Health Organisation, young carers, young people
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Fantastic day today at the IHUG (Ipswich Hospital User Group) celebration at Ipswich Hospital today where I was giving a presentation and then supporting their workshop afterwards. In my speech I talked about my work and achievements, how I…

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