WHPCA – Lucy Watts MBE / Lucy Watts Ltd

Lucy named 2020 Digital Leader of the Year

October 15, 2020
Lucy Watts MBE
advocate, artificial nutrition, award, chronic illness, collaborative care, communication, complex needs, coproduction, death, deterioration, digital, Digital Leaders 100, digital legacy, disability, disability rights, empowerment, end of life, festival spirit, health, healthcare, hospice, illness, information sharing, life limiting, life threatening, NHS, NHS Assembly, NHS England, NHS Long Term Plan, nurses, nursing, palliative, palliative care, patient activation, patient experience, patient group, Patient Leader, patient network, peer leader, personal health budget, personalised care, Public Involvement, quality of life, representative, social media, social network, social services, spokesperson, TEDx, user group, WHO, WHPCA, World Health Organisation, young people
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Lucy has been named the 2020 Digital Leader of the Year by Digi Leaders. Lucy said: "It's a true honour to have been awarded - and considered worthy of - the 2020 Digital Leader of the Year in the DL100.…

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2019 Review Blog – What A Year!

December 28, 2019
Lucy Watts MBE
advance care plan, advocate, artificial nutrition, assistance dog, awareness, BBC, benefits, Blog, BLOG, budget, care, care package, care planning, Carers, collaborative care, commissioning, communication, complex needs, continuing health, cope, coping, coproduction, death, deterioration, diagnosis, digital, digital legacy, disability, Disability Power 100, disability rights, disabled, DNACPR, doctor, documentary, dog, empowerment, end of life, family, festival, festival spirit, future, grateful, grief, health, healthcare, honorary degree, honorary masters, hope, hospice, Hospice UK, hospital, human rights, illness, information sharing, Inspiration, interview, intestinal failure, Lasting Power of Attorney, laugh, legacy, life expectancy, life limiting, life threatening, lucy's light, MBE, Molly, mother, mum, NHS, NHS Assembly, NHS England, NHS Long Term Plan, nurse, nurses, nursing, Open University, pain, palliative, palliative care, patient activation, patient experience, patient group, Patient Leader, patient network, peer leader, Peer Leadership Academy, personal health budget, personalised care, personalised care and support plan, PHB, podcast, politics, PORT, Power List, pseudo obstruction, Public Involvement, quality of life, rare disease, research, rights, sepsis, sexuality, Shaw Trust, sister, social media, social network, social services, speech, spokesperson, st christopher's, TEDx, TEDxNHS, TPN, transition, unpaid carers, user group, video, vlog, WHPCA, WOMAD, year review, young people
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Well, what a year 2019 has been. Not the best on the health front by any stretch of the imagination, but an incredible year in many other ways. This year is the year I was announced as the 9th most…

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Sitting on the NHS Assembly & Supporting Implementation of the NHS Long Term Plan

April 25, 2019
Lucy Watts MBE
assistance dog, Blog, BLOG, care, care package, care planning, collaborative care, commissioning, communication, complex needs, coproduction, diagnosis, digital, disability, doctor, empowerment, end of life, future, GP, health, healthcare, hospice, Hospice UK, hospital, ICPCN, illness, information sharing, interview, lancet, life limiting, life threatening, lucy's light, NHS, NHS Assembly, NHS Long Term Plan, NICE, nurse, nurses, nursing, pain, palliative, palliative care, parliament, patient activation, patient experience, patient group, Patient Leader, patient network, personal health budget, personalised care, personalised care and support plan, PHB, politics, primary care, Public Involvement, quality of life, rare disease, representative, rights, sepsis, social services, surgery, transition, unpaid carers, user group, WHO, WHPCA, World Health Organisation, young people
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With everything going on in the country currently, you’d be hard pressed to be able to ignore the negative press around the NHS, its future, the care it’s providing, patient satisfaction, and how other countries (without naming them) are trying…

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2018 – What A Year! & Looking Ahead to 2019

December 30, 2018
Lucy Watts MBE
advocate, assistance dog, award, awareness, Barbican, BBC, biopsy, birthday, Blog, BLOG, budget, care, Carers, central line, charity, chronic illness, collaborative care, complex needs, continuing health, cope, coping, coproduction, death, deterioration, diagnosis, digital legacy, disability, disability rights, disabled, doctor, documentary, dog, dog aid, Dr Tedros, end of life, Executive Board, family, festival, festival spirit, friend, fundraising, future, grateful, health, healthcare, honorary degree, honorary masters, hope, hospice, Hospice UK, hospital, House of Lords, human rights, IHUG, illness, Inspiration, interview, intestinal failure, investiture, legacy, life expectancy, life limiting, life threatening, lucy's light, MBE, mitochondrial, Molly, mother, mum, neuromuscular disorder, NHS, NMCCC, nurse, nurses, nursing, Open University, pain, palliative, palliative care, parliament, patient group, Patient Leader, patient network, Peer Leadership Academy, personal health budget, personalised care, PHB, Public Involvement, quality of life, rare disease, sepsis, septicaemia, sexuality, social network, speech, st christopher's, surgery, The J's Hospice, TPN, transition, TweetChat, unpaid carers, user group, video, WHO, WHPCA, WOMAD, World Health Organisation, year review, young people
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What a year 2018 has been. Such highs, such lows, but overall, it’s been an incredible year. I have had such fun, achieved a lot, received recognition for my work, been involved with even more work and projects, I’ve given…

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IHUG/ESNEFT User Group Celebration & Workshop; 12/10/18

October 12, 2018
Lucy Watts MBE
advocate, assistance dog, BLOG, Blog, budget, care, Carers, chronic illness, complex needs, continuing health, coproduction, digital legacy, disability, disabled, dog, Dr Tedros, Dreams Come True, Events, family, friend, health, healthcare, honorary degree, honorary masters, hospice, Hospice UK, hospital, House of Lords, human rights, ICPCN, IHUG, ileostomy, illness, Inspiration, intestinal failure, lancet, life limiting, life threatening, listen, lucy's light, MBE, Molly, mother, mum, neuromuscular disorder, NHS, nurse, nurses, nursing, Open University, pain, palliative, parliament, patient group, Patient Leader, patient network, personal health budget, PHB, Public Involvement, quality of life, rare disease, rights, sepsis, septicaemia, sexuality, social media, social services, speech, stoma, The J's Hospice, Together for short lives, TPN, transition, tube feeding, TweetChat, unpaid carers, user group, wheelchair, WHO, WHPCA, World Health Organisation, young carers, young people
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Fantastic day today at the IHUG (Ipswich Hospital User Group) celebration at Ipswich Hospital today where I was giving a presentation and then supporting their workshop afterwards. In my speech I talked about my work and achievements, how I…

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Hospice Care Week & #HatsOn4CPC

October 10, 2018
Lucy Watts MBE
advocate, awareness, awareness week, BLOG, Blog, care, charity, children, death, Dr Tedros, end of life, grateful, health, healthcare, hospice, Hospice UK, ICPCN, illness, legacy, life expectancy, life limiting, life threatening, NCPC, neuromuscular disorder, NHS, pain, palliative, quality of life, The J's Hospice, Together for short lives, WHO, WHPCA, World Health Organisation, young people
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This week it’s Hospice Care Week. All of you know I am a palliative and hospice care advocate having been a beneficiary of such services since I was 17. You all know my story, being born with health problems and…

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