young people – Lucy Watts MBE / Lucy Watts Ltd

Lucy’s Light – new blog for a new stage of my life

February 24, 2021
Lucy Watts MBE
advance care plan, Advance Decision, Blog, BLOG, care planning, communication, complex needs, cope, coping, deterioration, disability, DNACPR, end of life, family, fear, future, grateful, grief, grieving process, health, healthcare, hope, hospice, hospital, illness, Inspiration, Lasting Power of Attorney, legacy, life expectancy, life limiting, life threatening, listen, loss, love, lucy's light, NHS, nursing, pain, palliative, palliative care, personalised care, quality of life, young people
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I’ve decided to start a new blog to share my personal journey and experiences at a difficult time in our lives. You can find it at: www.lucyslight.co.uk The reason for this new blog is a recent change in my health.…

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Young Innovator Award Winner 2020/21

January 12, 2021
Lucy Watts MBE
award, awareness, Blog, Business, care, care package, care planning, Carers, children, chronic illness, collaborative care, communication, complex needs, continuing health, coproduction, COVID, death, deterioration, diagnosis, digital, Digital Leaders 100, digital legacy, disability, disability rights, disabled, doctor, education, empowerment, end of life, family, future, health, healthcare, hospice, hospital, human rights, illness, information sharing, Inspiration, internet, life expectancy, life limiting, life threatening, listen, Lived Experience Learning, News, NHS, nurses, nursing, pain, palliative, palliative care, patient activation, patient experience, patient group, Patient Leader, patient network, peer leader, personal health budget, personalised care, personalised care and support plan, PHB, primary care, Public Involvement, quality of life, rare disease, representative, research, rights, sepsis, social media, social network, social services, spokesperson, surgery, TPN, transition, tube feeding, unpaid carers, user group, video, wheelchair, young carers, young people
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I am excited to announce I am part of the 2020/21 cohort of the Innovate UK Young Innovators Awards. What a real privilege this is to be considered worthy among such amazing innovators. I am part of the cohort due…

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Lucy named 2020 Digital Leader of the Year

October 15, 2020
Lucy Watts MBE
advocate, artificial nutrition, award, chronic illness, collaborative care, communication, complex needs, coproduction, death, deterioration, digital, Digital Leaders 100, digital legacy, disability, disability rights, empowerment, end of life, festival spirit, health, healthcare, hospice, illness, information sharing, life limiting, life threatening, NHS, NHS Assembly, NHS England, NHS Long Term Plan, nurses, nursing, palliative, palliative care, patient activation, patient experience, patient group, Patient Leader, patient network, peer leader, personal health budget, personalised care, Public Involvement, quality of life, representative, social media, social network, social services, spokesperson, TEDx, user group, WHO, WHPCA, World Health Organisation, young people
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Lucy has been named the 2020 Digital Leader of the Year by Digi Leaders. Lucy said: "It's a true honour to have been awarded - and considered worthy of - the 2020 Digital Leader of the Year in the DL100.…

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International Wheelchair Day – 1st March 2020

March 1, 2020
Lucy Watts MBE
access, advance care plan, artificial nutrition, assistance dog, awareness, Blog, BLOG, Buckingham Palace, care, care package, central line, chronic illness, complex needs, coping, deterioration, diagnosis, disability, Disability Power 100, disability rights, disabled, discrimination, dog, empowerment, equality act, family, festival, fundraising, GCSE, health, healthcare, honorary degree, honorary masters, hospice, hospital, illness, Inspiration, intestinal failure, life limiting, life threatening, MBE, Molly, neuromuscular disorder, NHS, NHS England, nursing, Open University, pain, palliative, palliative care, parliament, patient experience, Patient Leader, peer leader, personal health budget, personalised care, politics, Power List, quality of life, rare disease, rights, social services, speech, TPN, tube feeding, tubes, wheelchair, WOMAD, young people
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Today it’s International Wheelchair Day and it celebrates the life-enhancing and life-changing benefits of having the right wheelchair, and celebrating the individuals who rely upon this piece of equipment to mobilise and live their lives to the fullest. I’ve…

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My TEDxNHS Talk is live! “One Sentence That Transformed My Life”

January 22, 2020
Lucy Watts MBE
advance care plan, Advance Decision, advocate, artificial nutrition, assistance dog, awareness, care, care package, care planning, Carers, collaborative care, communication, complex needs, cope, coping, deterioration, diagnosis, digital legacy, disability, disabled, DNACPR, empowerment, end of life, future, grief, health, healthcare, hope, hospice, hospital, illness, Inspiration, intestinal failure, Lasting Power of Attorney, legacy, life after death, life expectancy, life limiting, life threatening, listen, lucy's light, mitochondrial, Molly, NHS, NHS Assembly, NHS England, NHS Long Term Plan, nurse, nurses, nursing, pain, palliative, palliative care, patient activation, patient experience, personalised care, personalised care and support plan, quality of life, rare disease, sepsis, spokesperson, TEDx, TEDxNHS, TPN, video, World Health Organisation, young people
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2019 Review Blog – What A Year!

December 28, 2019
Lucy Watts MBE
advance care plan, advocate, artificial nutrition, assistance dog, awareness, BBC, benefits, BLOG, Blog, budget, care, care package, care planning, Carers, collaborative care, commissioning, communication, complex needs, continuing health, cope, coping, coproduction, death, deterioration, diagnosis, digital, digital legacy, disability, Disability Power 100, disability rights, disabled, DNACPR, doctor, documentary, dog, empowerment, end of life, family, festival, festival spirit, future, grateful, grief, health, healthcare, honorary degree, honorary masters, hope, hospice, Hospice UK, hospital, human rights, illness, information sharing, Inspiration, interview, intestinal failure, Lasting Power of Attorney, laugh, legacy, life expectancy, life limiting, life threatening, lucy's light, MBE, Molly, mother, mum, NHS, NHS Assembly, NHS England, NHS Long Term Plan, nurse, nurses, nursing, Open University, pain, palliative, palliative care, patient activation, patient experience, patient group, Patient Leader, patient network, peer leader, Peer Leadership Academy, personal health budget, personalised care, personalised care and support plan, PHB, podcast, politics, PORT, Power List, pseudo obstruction, Public Involvement, quality of life, rare disease, research, rights, sepsis, sexuality, Shaw Trust, sister, social media, social network, social services, speech, spokesperson, st christopher's, TEDx, TEDxNHS, TPN, transition, unpaid carers, user group, video, vlog, WHPCA, WOMAD, year review, young people
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Well, what a year 2019 has been. Not the best on the health front by any stretch of the imagination, but an incredible year in many other ways. This year is the year I was announced as the 9th most…

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Top 10 Most Influential Disabled Person in Britain

October 9, 2019
Lucy Watts MBE
advocate, assistance dog, award, awareness, BLOG, charity, disability, Disability Power 100, disability rights, disabled, end of life, grateful, health, healthcare, hospice, illness, Inspiration, life limiting, life threatening, MBE, NHS, palliative, palliative care, Patient Leader, peer leader, Power List, representative, rights, Shaw Trust, young people
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On Tuesday 8th October 2019 the 2019 Shaw Trust Disability Power 100 List was announced at a launch event in the House of Lords. Sadly I was unable to attend - I have been poorly this week with a chest…

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Lucy’s Light Vlog – Come With Me On A Busy Week In My Life (15th to 20th September 2019)

September 28, 2019
Lucy Watts MBE
advance care plan, Advance Decision, advocate, assistance dog, BLOG, care planning, Carers, commissioning, communication, complex needs, continuing health, cope, coping, coproduction, death, deterioration, disability, disability rights, DNACPR, end of life, family, fear, future, grateful, grief, health, healthcare, hospice, illness, information sharing, Inspiration, Lasting Power of Attorney, legacy, life limiting, life threatening, lucy's light, Molly, mother, mum, NHS, NHS England, NHS Long Term Plan, NICE, nursing, pain, palliative, palliative care, patient activation, patient experience, Patient Leader, peer leader, personal health budget, personalised care, personalised care and support plan, PHB, Public Involvement, quality of life, sepsis, speech, The J's Hospice, transition, unpaid carers, vlog, young people
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Come along with me on a week of my life, covering 15th-20th September, in which I had a very full-on time, various Skype calls/conferences, leading a virtual workshop, 3 separate speeches, and an NHS England meeting, and everything I got…

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Meeting 2 of the NHS Assembly: Supporting Carers, Workforce and Environmental Impact

July 6, 2019
Lucy Watts MBE
access, advocate, artificial nutrition, assistance dog, BLOG, care, care package, care planning, Carers, children, collaborative care, communication, complex needs, continuing health, coproduction, digital, disability, discrimination, doctor, education, empowerment, future, GP, health, healthcare, hospital, NHS, NHS Assembly, NHS England, NHS Long Term Plan, nurse, nurses, nursing, palliative care, patient experience, Patient Leader, peer leader, personal health budget, personalised care, PHB, politics, primary care, Public Involvement, unpaid carers, young carers, young people
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I’ll start this blog with “Happy 71st Birthday NHS!”. What an institution our NHS is, and what it achieves, I’m living proof of the success of our NHS, despite the challenges it faces. If you want to know what the…

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Dying Matters Week 2019 – Are We Ready? Our Short Films

May 18, 2019
Lucy Watts MBE
advance care plan, Advance Decision, advocate, artificial nutrition, awareness, awareness week, bereavement, BLOG, care, care planning, Carers, communication, complex needs, continuing health, cope, coping, death, deterioration, diagnosis, digital legacy, disability, DNACPR, Dr Kathryn Mannix, Dying Matters, end of life, family, future, grateful, grief, health, healthcare, hope, hospice, Hospice UK, hospital, illness, life expectancy, life limiting, life threatening, loss, love, mother, mum, nurse, nurses, nursing, pain, palliative, palliative care, patient activation, patient experience, personal health budget, personalised care, quality of life, rare disease, sepsis, TPN, unpaid carers, young people
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This week it has been Dying Matters Week 2019; 13th-19th May. The theme this year was “Are We Ready?” and what a great theme it is, as we really aren’t ready and we need to be. Dying Matters Awareness Week…

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