Today is Rare Disease Day 2019, celebrating people living with, and raising awareness of rare diseases. There are between 6000 and 8000 rare diseases, with new ones being discovered on a regular basis and equally more and more already known…
According to Rare Disease UK, rare diseases affect 1 in 17 of us at some point in our lifetime, which translates to 7% of the population being affected by a rare disease during their life. This equates to 3.5 million…
Today, Friday 19th September 2014, is Jeans for Genes day. Jeans for Genes is an annual fundraiser for Genetic Disorders UK to change the world for those living with genetic disorders. People pay to wear jeans at school or work…
We’ve all heard of cancer; the dreaded “C”. While there is still much to learn about cancer, and many lives lost to or affected by it, there are lots of charities to support these people and their families and a…
It's been 5 long years and 5 months since I became ill. It's been rough, very rough, and hard to cope at times, but there have been some wonderful things that have resulted from my ill health and the battles…